FacebookInstagramYouTube
Loading...

THE BIG HEART

The Big Heart is a book that helps to understand and empathize with the world of cardiomyopathies.

The big heart

There is pain, yes, and a lot of reality. Along with a great desire for rebirth and a cry of hope that reassures us.

You have been given a diagnosis of cardiomyopathy, and now?

Cardiomyopathies are still little known diseases and each case is different from the other. Today there are effective therapies that have been shown to improve symptoms, prevent or resolve complications, and increase survival and quality of life for the majority of patients with cardiomyopathy..   AICARM is a community of patients and healthcare professionals, which promotes the sharing of knowledge on new opportunities for the diagnosis and treatment of cardiomyopathies.

Start here:

Answers to frequently asked questions about symptoms, tests, complications and much more.

Read more

What lifestyles, nutrition and physical activity are recommended or recommended in case of cardiomyopathy.

Read more

If you need clarification or need help, contact our Hearts in Listening cardiomyopathy helpdesk

Hearts Listening

The latest news and discoveries for the therapy of Cardiomyopathies.

Read more

Read the experience of Florence which also gave birth to AICARM and the stories told by some assisted patients.

Read more

Il Cuore Grande talks about it on RAI 2 at "Tutto il bello che c'è"

In the Rai2 program - "Tutto il bello che c'è" - on 7 September 2023, the book "The big heart - Stories of women and men facing the challenge of cardiomyopathies" was discussed. The program, hosted by journalist Silvia Vaccarezza, discussed the objective of contemporary medicine to put the patient at the center of its activity. Here the news:

Il Cuore Grande talks about it on RAI 2 at "Tutto il bello che c'è"

AICARM NEWS

2703, 2024

The first Italian Report on cardiomyopathies presented in the Senate

On 19 March 2024, the Report on cardiomyopathies in Italy was presented at the Senate of the Republic, entitled “Cardiomyopathies Matter. A roadmap to improve the diagnosis and care of patients with cardiomyopathy in Italy". The objective of this important event was dictated by the desire to contribute to improving the diagnosis and care of patients with cardiomyopathy in Italy, to raise public awareness and ensure that these pathologies receive the right attention from the legislator, the decision makers of the national healthcare system and information channels at European and national level.

2203, 2024

AICARM NEWS – March 2024

the themes we propose in the March newsletter open the way to new lines of intervention in our commitment to providing all of you with in-depth and up-to-date information. The article on the "placebo and nocebo effect" kicks off an editorial line on the crucial topic of drugs. We have seen in recent weeks how important the experimentation and arrival of new generation products is, as well as their history and their full availability to patients. As regards Nadolol, for example, the shortage period for which AICARM Aps intervened several times has ended and the drug is once again available in pharmacies.

2103, 2024

Davide Antoniucci: dedication to patients and innovation

The memory of Professor Franco Cecchi The Director of the Cardiology Department of the Careggi Hospital for over two decades, who passed away a few days ago, is responsible for the introduction of a new technique for the treatment of patients with acute myocardial infarction

2103, 2024

The availability of genetic testing for cardiomyopathies in Italy

The results of a survey on the availability of genetic testing at the main Italian medical genetics laboratories of the NHS for patients with cardiomyopathies. Together with AICARM Aps, Dr. Maria Iascone (director of the Medical Genetics Laboratory of the ASTT Papa Giovanni XXIII of Bergamo) and Dr. Francesca Girolami (Cardiogenetics of the Meyer IRCCS University Hospital, of Florence). These are the most important conclusions: in most cases the test is carried out together with genetic counselling, it requires an average of 3-6 months to carry out and is always carried out with NGS technology.

2103, 2024

What happens when we take a drug: Placebo and Nocebo effects

Whenever a drug is used for the first time in the treatment of diseases, the patient is faced with two possible effects. The "placebo effect", i.e. a perceived or real benefit on the part of the patient who believes he is undergoing an effective treatment for his clinical condition even if the medicine does not contain active properties. It is the "nocebo" effect (from the Latin "nocere", to damage), that is, the disturbing shadow of side effects. The detailed information leaflets of medicines, the so-called "leaflets", list a long list of possible negative health effects. These fears, fueled by negative expectations, can trigger the phenomenon. The tools to overcome the problem are correct information and the relationship of trust between doctor and patient.

2602, 2024

AICARM NEWS – February 2024

There is important news on the drug front. Professor Iacopo Olivotto takes stock of the situation and illustrates the characteristics and status of the trials on this medicine. As regards the activity of our Association, we must note with satisfaction the strengthening of the volunteer service at the Careggi Unit. One of them, Valerio Pelini, our vice president, talks about it. The next course for expert patients in hereditary myocardial diseases will be held in Milan on Saturday 23 March.

2102, 2024

Proper hydration is crucial to patient health

Adapting the amount of water based on individual needs and environmental conditions is an effective way to contribute to overall and heart health. For this reason it is good to know and follow EFSA's recommendations.

Latest news

Hearts Listening

Cardiomyopathy help

Hearts Listening is the cardiomyopathies help desk carried out by our expert and trained volunteers who, through listening, discussion and sharing of experiences will provide you with personalized support to better deal with your Cardiomyopathy experience or that of a family member.

You can speak to an operator by calling 055 06 20 128 Tuesdays and Thursdays from 15pm to 18pm. On other days you can leave a message on the answering machine or send a request using the appropriate form: inquiry form.

Support Aicarm with a donation

HEART DISEASE

Cardiomyopathies (CM)

CM cardiomyopathies

Cardiomyopathies constitute an increasingly consistent percentage of patients who turn to the cardiologist, sports doctor and emergency doctor.

Read more

Other Cardiomyopathies

Genetics Other CM

With the different forms of cardiomyopathy, numerous diseases occur, some of which are caused by genetic mutations, while others have different, well-identifiable causes. Here are the most frequent ones.

Read more

Therapies

Therapies

Today there are numerous therapies available that can improve symptoms, prevent or resolve complications and increase survival and quality of life.

Read more

Subscribe to AICARM NEWS
the AICARM APS Newsletter

Read our information on data processing Privacy Policy

Back to the top