Articles and news on the international activities of AICARM Onlus
Also this year, AICARM Onlus took part in the CardioMYopathy Awareness Week, an important global initiative dedicated to raising public awareness of cardiomyopathies and the genetic analysis useful for identifying the gene or genes responsible for the development of cardiomyopathy.
AICARM fully supports the guiding principles of the Global Heart Hub (GHH), the global alliance of patient organizations, for patient involvement and engagement in cardiomyopathy research.
AICARM protagonist of the initiative of the European Parliament which on 15 November placed cardiomyopathies at the center of attention in a conference entitled: “Cardiomyopathies issue: cardiovascular diseases underestimated in Europe”.
AICARM joins ERN GUARD-Heart, a virtual European network to facilitate access to the diagnosis and treatment of rare and complex heart diseases European Reference Networks (ERN) - European reference networks The ERNs, the result of a project of the European Commission, they are virtual networks involving healthcare institutions across Europe. They aim to address complex or rare diseases and conditions that require treatment [...]
AICARM fully supports the Global Heart Hub guiding principles for patient involvement and engagement in Cardiomyopathy Research Global Heart Hub (GHH) supports the principle of patient involvement and engagement in Cardiomyopathy research. The GHH Cardiomyopathy Patient Council believes that the perspective of people with personal experience of Cardiomyopathy and the impact it can have, [...]
Cardiomyopathy is a family of diseases that affect the heart muscle: "cardio" means heart, "mine" means muscle and "patia" means disease. It is not a specific disease, but a group of diseases that affect the structure of the heart and reduce its ability to pump blood throughout the body.
The international social communication campaign aimed at raising awareness of cardiomyopathies in the population has ended, with the aim of creating a single and global voice for all affected patients. It was the first joint action carried out by Aicarm after its entry into Global Heart Hub, a worldwide alliance between patient associations. The campaign was launched on a global scale [...]
Aicarm joins Global Heart Hub, a worldwide alliance between the patient associations of Annalisa and Matteo Pinciroli Global Heart Hub and Aicarm: the birth of a collaboration that makes AICARM part of an international network of associations which aims to create a unique voice and global for all patients with heart disease. Global Heart Hub (www.globalhearthub.org, based in [...]
