Articles and news on the international activities of AICARM Onlus

Cardiomyopathy Patient Council Meeting & Industry Round Table Meeting

The Cardiomyopathy Patient Council Meeting & Industry Round Table Meeting will take place in Florence on Saturday 30 September, Sunday 1 and Monday 2 October. AICARM welcomes all participants in this important meeting organized by GGH.

27 September 2023|

Cardiomyopathies and genetic analysis: large participation in the awareness campaign

Also this year, AICARM Onlus took part in the CardioMYopathy Awareness Week, an important global initiative dedicated to raising public awareness of cardiomyopathies and the genetic analysis useful for identifying the gene or genes responsible for the development of cardiomyopathy.

August 28 2023|


AICARM joins ERN GUARD-Heart, a European virtual network to facilitate access to the diagnosis and treatment of rare and complex heart diseases. ERNs, the result of a European Commission project, are virtual networks involving healthcare institutions across Europe. They aim to address complex or rare diseases and conditions that require highly specialized care and concentration of knowledge and resources.

November 10, 2022|

AICARM supports the guiding principles of Global Heart Hub

AICARM fully supports the Global Heart Hub Guiding Principles for Patient Involvement and Engagement in Cardiomyopathy Research. Global Heart Hub (GHH) supports the principle of patient involvement and engagement in Cardiomyopathy Research. The GHH Cardiomyopathy Patient Council believes that the perspective of people with personal experience of Cardiomyopathy, and the impact it can have, should inform all stages of the research process to lead to better outcomes for people with the condition.

November 10, 2022|

GHH campaign #cardiomiopatiaconsapevole: boom on our social networks

The international social communication campaign aimed at raising awareness of cardiomyopathies in the population has ended, with the aim of creating a single and global voice for all affected patients. It was the first joint action carried out by Aicarm after its entry into Global Heart Hub, a worldwide alliance between patient associations. 

July 19 2022|

Aicarm joins Global Heart Hub, a worldwide alliance between patient associations

Aicarm enters the Global Heart Hub, a global alliance between the patient associations of Annalisa and Matteo Pinciroli Global Heart Hub and Aicarm: the birth of a collaboration that makes AICARM part of an international network of associations whose aim is to create a unique voice and global for all heart disease patients. Global Heart Hub (, based in [...]

May 16, 2022|
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