Articles and news on the international activities of AICARM Onlus

AICARM protagonist in the European Parliament

AICARM protagonist of the initiative of the European Parliament which on 15 November placed cardiomyopathies at the center of attention in a conference entitled: “Cardiomyopathies issue: cardiovascular diseases underestimated in Europe”.

November 21, 2022|

AICARM joins ERN GUARD-Heart

AICARM joins ERN GUARD-Heart, a virtual European network to facilitate access to the diagnosis and treatment of rare and complex heart diseases European Reference Networks (ERN) - European reference networks The ERNs, the result of a project of the European Commission, they are virtual networks involving healthcare institutions across Europe. They aim to address complex or rare diseases and conditions that require treatment [...]

November 10, 2022|

AICARM supports the guiding principles of Global Heart Hub

AICARM fully supports the Global Heart Hub guiding principles for patient involvement and engagement in Cardiomyopathy Research Global Heart Hub (GHH) supports the principle of patient involvement and engagement in Cardiomyopathy research. The GHH Cardiomyopathy Patient Council believes that the perspective of people with personal experience of Cardiomyopathy and the impact it can have, [...]

November 10, 2022|

GHH campaign #cardiomiopatiaconsapevole: boom on our social networks

The international social communication campaign aimed at raising awareness of cardiomyopathies in the population has ended, with the aim of creating a single and global voice for all affected patients. It was the first joint action carried out by Aicarm after its entry into Global Heart Hub, a worldwide alliance between patient associations. The campaign was launched on a global scale [...]

July 19 2022|

Aicarm joins Global Heart Hub, a worldwide alliance between patient associations

Aicarm joins Global Heart Hub, a worldwide alliance between the patient associations of Annalisa and Matteo Pinciroli Global Heart Hub and Aicarm: the birth of a collaboration that makes AICARM part of an international network of associations which aims to create a unique voice and global for all patients with heart disease. Global Heart Hub (www.globalhearthub.org, based in [...]

May 16, 2022|
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