AICARM ONLUS IN THE WORLD
AICARM Onlus is part of an international network of associations and organizations that deal with patients with Cardiomyopathy with the aim of changing the standards of diagnosis, therapy, care and assistance for the better.
AICARM Onlus collaborates with other international associations and organizations and is actively committed to forging new relationships to enhance the voice of patients with Cardiomyopathy.
Latest news
Cardiomyopathy Patient Council Meeting & Industry Round Table Meeting
The Cardiomyopathy Patient Council Meeting & Industry Round Table Meeting will take place in Florence on Saturday 30 September, Sunday 1 and Monday 2 October. AICARM welcomes all participants in this important meeting organized by GGH.
Cardiomyopathies and genetic analysis: large participation in the awareness campaign
Also this year, AICARM Onlus took part in the CardioMYopathy Awareness Week, an important global initiative dedicated to raising public awareness of cardiomyopathies and the genetic analysis useful for identifying the gene or genes responsible for the development of cardiomyopathy.
AICARM protagonist in the European Parliament
AICARM protagonist of the initiative of the European Parliament which on 15 November placed cardiomyopathies at the center of attention in a conference entitled: “Cardiomyopathies issue: cardiovascular diseases underestimated in Europe”.
AICARM joins ERN GUARD-Heart
AICARM joins ERN GUARD-Heart, a European virtual network to facilitate access to the diagnosis and treatment of rare and complex heart diseases. ERNs, the result of a European Commission project, are virtual networks involving healthcare institutions across Europe. They aim to address complex or rare diseases and conditions that require highly specialized care and concentration of knowledge and resources.
AICARM supports the guiding principles of Global Heart Hub
AICARM fully supports the Global Heart Hub Guiding Principles for Patient Involvement and Engagement in Cardiomyopathy Research. Global Heart Hub (GHH) supports the principle of patient involvement and engagement in Cardiomyopathy Research. The GHH Cardiomyopathy Patient Council believes that the perspective of people with personal experience of Cardiomyopathy, and the impact it can have, should inform all stages of the research process to lead to better outcomes for people with the condition.
Cardiomyopathy let's find out together
Cardiomyopathy is a family of diseases that affect the heart muscle: "cardio" means heart, "mine" means muscle and "patia" means disease. It is not a specific disease, but a group of diseases that affect the structure of the heart and reduce its ability to pump blood throughout the body.
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