AICARM informs and helps patients
You have been given a diagnosis of cardiomyopathy, and now? Cardiomyopathies are still little known diseases and each case is different from the other. Today there are effective therapies that have been shown to improve symptoms, prevent or resolve complications, and increase survival and quality of life of the majority of patients with cardiomyopathy.This is why it is important to get information from those who know them well. AICARM is an association of doctors, nurses, patients and benefactors founded upon extensive experience in research and assistance acquired in Florence in this field. On our association website you will find information, documents on studies and research in progress, you can read and listen to the stories and experiences of other patients. If you think you need help, please contact us.
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The latest news and discoveries for the therapy of Cardiomyopathies.
Hearts Listening is the new Aicarm Onlus telephone service carried out by our expert and trained volunteers who, through listening, discussion and sharing of experiences, will provide you with personalized support to best deal with your cardiomyopathy experience or that of a family member.
You can speak to an operator by calling 055 06 20 128 Tuesdays and Thursdays from 15pm to 18pm. On other days you can leave a message on the answering machine or send a request using the appropriate form: inquiry form.
AICARM NEWS
II MASTERCLASS – HYPERTROPHIC CARDIOMYOPATHY AND CARDIAC AMYLOIDOSIS
The II MASTERCLASS - HYPERTROPHIC CARDIOMYOPATHY AND CARDIAC AMYLOIDOSIS will be held in Florence on 8 and 9 June, under the patronage of AICARM Onlus. The course aims to provide participants with an exhaustive and updated framework on the pathophysiology, diagnosis and treatment of patients with hypertrophic phenotype cardiomyopathies and amyloidosis, transmitting the clinical and research experience gained in over 40 years in the Florence Center at Careggi and at the Meyer, with the valuable contribution of experts from prestigious national institutions.
AICARM NEWS – May 2023
The May 2023 issue of AICARM NEWS inaugurates a new way of offering information and services to members, their families and all interested parties. It contains a sort of vademecum for all patients who turn to specialists to identify - if any - the genetic origin of their cardiomyopathy and ask themselves questions about the times and methods of counseling, the characteristics and effectiveness of the tests and the what to do after possibly identifying a genetic mutation.
Genetic testing and counseling in hypertrophic cardiomyopathy
When should the test be performed, do patients ask themselves? The answer is: following a certain diagnosis or reasonable suspicion of the disease. The same rules apply to children, with the addition that the test can very rarely be performed even in the prenatal age.
Are cardiomyopathies rare? – On-Line meeting April 13 at 19.00
ARE CARDIOMYOPATHIES RARE? In general they are not uncommon, but some forms are. The importance of accurate diagnosis. Thursday [...]
AICARM NEWS – March 2023
Dear friends of AICARM, the year began with the course for expert patients which was held in Viareggio on 28 January. It was the fourth meeting, after the one in Milan and the two in Florence.
The impact of diagnosis on children and adults: the search for a new balance
The diagnosis of a pathology such as hypertrophic cardiomyopathy is like an earthquake that upsets the balance of the person receiving it and of his entire family environment
Reception and listening: the mission of the expert patient
Primo Botti, Aicarm volunteer, AICARM volunteer, works at the Cardiomyopathies Unit of Careggi: medical clinic, pavilion 13, second floor. His role is an integral part of the doctor-patient approach that is increasingly developing in this context and which consists of listening, talking to patients and giving them support.
Latest news
- II MASTERCLASS – HYPERTROPHIC CARDIOMYOPATHY AND CARDIAC AMYLOIDOSIS May 22, 2023
- AICARM NEWS – May 2023 May 14, 2023
- Genetic testing and counseling in hypertrophic cardiomyopathy May 10, 2023
- The 15 most frequently asked questions in genetic testing and counseling in hypertrophic cardiomyopathy May 10, 2023
- A sports trophy dedicated to Giulia, a strong message against "sudden death" April 30 2023
News
HEART DISEASE
Cardiomyopathies constitute an increasingly consistent percentage of patients who turn to the cardiologist, sports doctor and emergency doctor.
With the different forms of cardiomyopathy, numerous diseases occur, some of which are caused by genetic mutations, while others have different, well-identifiable causes. Here are the most frequent ones.
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