AICARM informs and helps patients
You have been given a diagnosis of cardiomyopathy, and now? Cardiomyopathies are still little known diseases and each case is different from the other. Today there are effective therapies that have been shown to improve symptoms, prevent or resolve complications, and increase survival and quality of life of the majority of patients with cardiomyopathy.This is why it is important to get information from those who know them well. AICARM is an association of doctors, nurses, patients and benefactors founded upon extensive experience in research and assistance acquired in Florence in this field. On our association website you will find information, documents on studies and research in progress, you can read and listen to the stories and experiences of other patients. If you think you need help, please contact us.
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The latest news and discoveries for the therapy of Cardiomyopathies.
HEART DISEASE
Cardiomyopathies constitute an increasingly consistent percentage of patients who turn to the cardiologist, sports doctor and emergency doctor.
With the different forms of cardiomyopathy, numerous diseases occur, some of which are caused by genetic mutations, while others have different, well-identifiable causes. Here are the most frequent ones.
Today there are numerous therapies available that can improve symptoms, prevent or resolve complications and increase survival and quality of life.
AICARM NEWS
Recommendations for patients: attention to the control of the subcutaneous defibrillators Emblem A209-A219
The utmost attention should be paid to checking the operation of the Emblem A209-A219 subcutaneous defibrillators as the device may need to be replaced due to premature and accelerated battery depletion.
License renewal: regulatory chaos and costs, a nightmare for patients
Driver's license renewal: for those who have a subcutaneous defibrillator it is chaos. The Commission for special licenses follows very strict guidelines approved by the association of medical examiners Asl, however never adopted by the Tuscany Region.
Gloria's happiness: the dilated cardiomyopathy gene was not passed on to her children
Gloria's happiness: the dilated cardiomyopathy gene was not passed on to Laura D'Ettole's children It was a [...]
Speech and lecture by Prof Cecchi at the conference for expert patients
In this talk, Prof Cecchi introduces the participants to the conference on hereditary diseases of the myocardium. It continues with a [...]
Corriere Salute talks about cardiomyopathies and Aicarm
Today we talk about cardiomyopathies and Aicarm in the Health insert of the Corriere della Sera. The President of Aicarm - Prof. [...]
The effects of the pandemic: the anguish of young people in search of a new equilibrium
Overwhelmed by images of disease and real death, fear of infecting their loved ones: the psychic life of adolescents has been subjected to limitless stress in the pandemic. And their real behaviors are far from the stereotype sometimes spread by the media: violent, reckless and careless. Guendalina Rossi, psychiatrist and psychotherapist - two professional studios, one in Florence and the other in Arezzo - tells us about their difficult reality of life and their invisibility, which stands out in the spiral of suffering that involved everyone.
