AICARM APS - Italian Association of Cardiomyopathies

You have been given a diagnosis of cardiomyopathy, and now?

Cardiomyopathies are still little known diseases and each case is different from the other. Today there are effective therapies that have been shown to improve symptoms, prevent or resolve complications, and increase survival and quality of life for the majority of patients with cardiomyopathy..   AICARM is a community of patients and healthcare professionals, which promotes the sharing of knowledge on new opportunities for the diagnosis and treatment of cardiomyopathies.

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Answers to frequently asked questions about symptoms, tests, complications and much more.

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What lifestyles, nutrition and physical activity are recommended or recommended in case of cardiomyopathy.

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If you need clarification or need help, contact our Hearts in Listening cardiomyopathy helpdesk

Hearts Listening

The latest news and discoveries for the therapy of Cardiomyopathies.

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Read the experience of Florence which also gave birth to AICARM and the stories told by some assisted patients.

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Call Listening Hearts the cardiomyopathy help desk

Hearts Listening is the cardiomyopathies help desk carried out by our expert and trained volunteers who, through listening, discussion and sharing of experiences will provide you with personalized support to better deal with your Cardiomyopathy experience or that of a family member.

You can speak to an operator by calling 055 06 20 128 Tuesday, Wednesday and Thursday from 15pm to 18pm. On other days you can leave a message on the answering machine or send a request using the appropriate form: inquiry form.

Help us support patients with cardiomyopathy

Christmas Greetings - Donation
Christmas Greetings - Donation

To learn about the forms of Cardiomyopathy and the available therapies

Cardiomyopathies
Cardiomyopathies

Cardiomyopathies represent a growing portion of cases seen by cardiologists, sports and emergency physicians. These pathologies include different forms, some of genetic origin, others with different causes.

Cardiomyopathy Therapies
Cardiomyopathy therapies
Today there are numerous therapies available that can improve symptoms, prevent or resolve complications and increase survival and quality of life.
Video Library of the Heart

Access our Video Library of the Heart where authoritative experts explain in a clear and accessible way everything you need to know about diagnosis, therapies and daily management of these pathologies.

From genetics to new treatments, from pregnancy to physical activity, each topic is presented in short videos designed for patients and families. A complete information path, always available, to help you live better with a cardiomyopathy. To access the content, all you need is a simple free registration that will give you immediate access to all the videos.

AICARM News

1012, 2024

AICARM APS Webinar Invitation December 17, 2024 at 18.00:XNUMX p.m.

We invite you to the webinar on December 17 at 18 pm where we will discuss the following topics: Hypertrophic obstructive cardiomyopathy: updates on the AIFA resolution regarding the reimbursement of mavacamtem and The importance of CPR training: when every minute can save a life

2511, 2024

AICARM NEWS – November 2024

The November issue opens with the conference held in Florence on November 9. Last November, AICARM inaugurated the first Cardiomyopathy Day, an innovative event that combined medical training and sharing of patients' experiences. The initiative highlighted the importance of open dialogue in overcoming the fragility associated with the disease, offering a valuable space for listening and discussion. With this aim of growth and support, the association is launching a new monthly column edited by Dr. Niccolò Maurizi, a leading cardiologist. The "Medicine&Science" column aims to delve into the various cardiomyopathies on a monthly basis, explaining diagnostic and therapeutic aspects in clear, scientific language. The goal is to continue to develop an informed, aware, and supportive community, where patients and professionals can share knowledge and mutual support.

2411, 2024

AICARM at the Astori Association Conference in Florence

Prof. Franco Cecchi, President of AICARM, participated as a speaker at the Astori Association conference held in Florence on November 22. The presentation illustrated the role of AICARM in the prevention of cardiomyopathies, including cardiopulmonary resuscitation courses, and showed the critical issues existing in the certification of physical or sports activity for patients with Cardiomyopathy.

Our publications

The big heart

The big heart

Stories of women and men facing the challenge of cardiomyopathies

Report on cardiomyopathies in Italy

Cardiomyopathies report in Italy

Cardiomyopathies Matter. A roadmap to improve the diagnosis and care of patients with cardiomyopathy in Italy

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