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Florence AICARM APS courses
AICARM APS training courses Florence 2023

THE BIG HEART

The Big Heart is a book that helps to understand and empathize with the world of cardiomyopathies.

The big heart

There is pain, yes, and a lot of reality. Along with a great desire for rebirth and a cry of hope that reassures us.

You have been given a diagnosis of cardiomyopathy, and now?

Cardiomyopathies are still little known diseases and each case is different from the other. Today there are effective therapies that have been shown to improve symptoms, prevent or resolve complications, and increase survival and quality of life for the majority of patients with cardiomyopathy..   AICARM is a community of patients and healthcare professionals, which promotes the sharing of knowledge on new opportunities for the diagnosis and treatment of cardiomyopathies.

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Answers to frequently asked questions about symptoms, tests, complications and much more.

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What lifestyles, nutrition and physical activity are recommended or recommended in case of cardiomyopathy.

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If you need clarification or need help, contact our Hearts in Listening cardiomyopathy helpdesk

Hearts Listening

The latest news and discoveries for the therapy of Cardiomyopathies.

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Read the experience of Florence which also gave birth to AICARM and the stories told by some assisted patients.

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Il Cuore Grande talks about it on RAI 2 at "Tutto il bello che c'è"

In the Rai2 program - "Tutto il bello che c'è" - on 7 September 2023, the book "The big heart - Stories of women and men facing the challenge of cardiomyopathies" was discussed. The program, hosted by journalist Silvia Vaccarezza, discussed the objective of contemporary medicine to put the patient at the center of its activity. Here the news:

Il Cuore Grande talks about it on RAI 2 at "Tutto il bello che c'è"

AICARM NEWS

1211, 2023

NADOLOL, import of the drug and galenic preparation

According to AIFA, Nadolol will return to the market next March 2024. In the meantime, patients who use Nadolol can purchase it abroad or use the galenic preparation prepared by an Italian pharmacy that has the active ingredient and a laboratory equipped for these preparations. The first useful addresses of pharmacies contacted by our volunteers in the cities of Milan and Florence are given.

1511, 2023

AICARM NEWS – November 2023

Aicarm's autumn activity is very intense, with the third edition of the course for expert patients and cardiopulmonary resuscitation scheduled for November 25th. Furthermore, our action focuses on information updating, such as the search for alternatives to make up for the shortage of Nadolol, and thanks supporters and institutions for their support and participation in the presentation of the book "Il Cuore Grande" at Villa Bardini, Florence. Exceptional godmother was the actress Pamela Villoresi who read some touching stories from the book with great talent.

1311, 2023

Life in your hands: the importance of cardiopulmonary resuscitation for families of patients with cardiomyopathy

Cardiac arrest is a reality feared by everyone, however people suffering from a form of cardiomyopathy are at greater risk than the general population. This dramatic event can happen suddenly, but thanks to Cardiopulmonary Resuscitation (CPR) and the use of the defibrillator, we can save lives and reduce the consequences of a lack of oxygenation to the brain and other vital organs.

2810, 2023

The epic of the patient in medicine: from sinner to expert

In the article by Dr Alberto Dolara, the fundamental role that the expert patient plays today in the context of the therapeutic path is highlighted. It is underlined that the patient should be the fulcrum around which the entire healthcare activity revolves. However, the author also explores how, over time, the patient has often been subject to variable perceptions from the society around him, influencing his experience of care and his involvement in the decision-making process.

2810, 2023

Nadolol can be purchased in Switzerland and the Vatican

AICARM, aware of the inconvenience caused by the lack of nadolol, has taken action to identify suppliers outside the national territory. We managed to find two suppliers, thus offering an immediate solution to the people who hire it. For those who decide to opt for this solution, it is important to know that a valid prescription is required, and the costs of the drug and its shipping must be covered.

2210, 2023

AICARM NEWS – October 2023

In the June 2023 issue of AICARM NEWS, the book "Il Cuore Grande" is presented, which collects the story of twenty people and families with cardiomyopathy. It continues with the experience of the AICARM volunteer at the Careggi cardiomyopathy clinic and the Masterclass Hypertrophic cardiomyopathy and cardiac amyloidosis held in Florence at the beginning of June. The date of the next course for expert patients has been announced, to be held in Arezzo on 9 September.

Latest news

Hearts Listening

Cardiomyopathy help

Hearts Listening is the cardiomyopathies help desk carried out by our expert and trained volunteers who, through listening, discussion and sharing of experiences will provide you with personalized support to better deal with your Cardiomyopathy experience or that of a family member.

You can speak to an operator by calling 055 06 20 128 Tuesdays and Thursdays from 15pm to 18pm. On other days you can leave a message on the answering machine or send a request using the appropriate form: inquiry form.

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HEART DISEASE

Cardiomyopathies (CM)

CM cardiomyopathies

Cardiomyopathies constitute an increasingly consistent percentage of patients who turn to the cardiologist, sports doctor and emergency doctor.

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Other Cardiomyopathies

Genetics Other CM

With the different forms of cardiomyopathy, numerous diseases occur, some of which are caused by genetic mutations, while others have different, well-identifiable causes. Here are the most frequent ones.

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Therapies

Therapies

Today there are numerous therapies available that can improve symptoms, prevent or resolve complications and increase survival and quality of life.

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