AICARM informs and helps patients
You have been given a diagnosis of cardiomyopathy, and now? Cardiomyopathies are still little known diseases and each case is different from the other. Today there are effective therapies that have been shown to improve symptoms, prevent or resolve complications, and increase survival and quality of life of the majority of patients with cardiomyopathy.This is why it is important to get information from those who know them well. AICARM is an association of doctors, nurses, patients and benefactors founded upon extensive experience in research and assistance acquired in Florence in this field. On our association website you will find information, documents on studies and research in progress, you can read and listen to the stories and experiences of other patients. If you think you need help, please contact us.
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The latest news and discoveries for the therapy of Cardiomyopathies.
HEART DISEASE
Cardiomyopathies constitute an increasingly consistent percentage of patients who turn to the cardiologist, sports doctor and emergency doctor.
With the different forms of cardiomyopathy, numerous diseases occur, some of which are caused by genetic mutations, while others have different, well-identifiable causes. Here are the most frequent ones.
Today there are numerous therapies available that can improve symptoms, prevent or resolve complications and increase survival and quality of life.
AICARM NEWS
Lisa Salberg: Shared decision making: the patient's perspective. A global vision
What does “shared decision-making” mean. Lisa Salberg founder and CEO of the American Association for Hypertrophic Myocarditis (HCMA) sent a video message to the "Advances in Cardiomyopathies" conference on 9-10 September, explaining how the concept is implemented in the United States. “We want patients to be excited about the future and understand their options and know how to ask smart questions that will help them achieve their goals,” he said. We publish broad passages from the speech that provide important elements for the discussion on the subject in Italy
Training course for EXPERT PATIENTS IN HEREDITARY MYOCARDIAL DISEASES - 1st edition
We are pleased to announce the first edition of the training course for patients experienced in myocardial diseases which [...]
Covid comes when you least expect it
The testimony of Dino, 45 years old and has hypertrophic cardiomyopathy, who successfully underwent myectomy over 10 years ago. Finally recovered from Covid, he can't wait to enjoy spring on a bicycle.
RITMODAN RETARD - AIFA PRESS RELEASE
We publish the information note issued by AIFA regarding the lack of Ritmodan Retard®. As you can read in the information note, [...]
Speech and lecture by Prof Cecchi at the conference for expert patients
In this talk, Prof Cecchi introduces the participants to the conference on hereditary diseases of the myocardium. It continues with a [...]
The effects of the pandemic: the anguish of young people in search of a new equilibrium
Overwhelmed by images of disease and real death, fear of infecting their loved ones: the psychic life of adolescents has been subjected to limitless stress in the pandemic. And their real behaviors are far from the stereotype sometimes spread by the media: violent, reckless and careless. Guendalina Rossi, psychiatrist and psychotherapist - two professional studios, one in Florence and the other in Arezzo - tells us about their difficult reality of life and their invisibility, which stands out in the spiral of suffering that involved everyone.
