AICARM informs and helps patients

You have been given a diagnosis of cardiomyopathy, and now? Cardiomyopathies are still little known diseases and each case is different from the other. Today there are effective therapies that have been shown to improve symptoms, prevent or resolve complications, and increase survival and quality of life of the majority of patients with cardiomyopathy.This is why it is important to get information from those who know them well. AICARM is an association of doctors, nurses, patients and benefactors founded upon extensive experience in research and assistance acquired in Florence in this field. On our association website you will find information, documents on studies and research in progress, you can read and listen to the stories and experiences of other patients. If you think you need help, please contact us.

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Questions and answers

Answers to frequently asked questions about symptoms, tests, complications and much more.

Recommendations and advice

What lifestyles, nutrition and physical activity are recommended or recommended in case of cardiomyopathy.

Our stories

In 1972 the project that will lead to the Cardiomyopathies Unit of the Careggi AOUC begins in Florence. Read the experience of Florence that also gave birth to AICARM and the stories told by some patients assisted.

Do you need any help?

If you need clarification or need help, please contact us. We will be happy to offer our contribution.

News in treatment for Cardiomyopathies

The latest news and discoveries for the therapy of Cardiomyopathies.

Hearts Listening

Hearts Listening is the new Aicarm Onlus telephone service carried out by our expert and trained volunteers who, through listening, discussion and sharing of experiences, will provide you with personalized support to best deal with your cardiomyopathy experience or that of a family member.

You can speak to an operator by calling 055 06 20 128 Tuesdays and Thursdays from 15pm to 18pm. On other days you can leave a message on the answering machine or send a request using the appropriate form: inquiry form.

AICARM NEWS

2205, 2023

II MASTERCLASS – HYPERTROPHIC CARDIOMYOPATHY AND CARDIAC AMYLOIDOSIS

The II MASTERCLASS - HYPERTROPHIC CARDIOMYOPATHY AND CARDIAC AMYLOIDOSIS will be held in Florence on 8 and 9 June, under the patronage of AICARM Onlus. The course aims to provide participants with an exhaustive and updated framework on the pathophysiology, diagnosis and treatment of patients with hypertrophic phenotype cardiomyopathies and amyloidosis, transmitting the clinical and research experience gained in over 40 years in the Florence Center at Careggi and at the Meyer, with the valuable contribution of experts from prestigious national institutions.

1005, 2023

Genetic testing and counseling in hypertrophic cardiomyopathy

When should the test be performed, do patients ask themselves? The answer is: following a certain diagnosis or reasonable suspicion of the disease. The same rules apply to children, with the addition that the test can very rarely be performed even in the prenatal age.

504, 2023

Are cardiomyopathies rare? – On-Line meeting April 13 at 19.00

ARE CARDIOMYOPATHIES RARE? In general they are not uncommon, but some forms are. The importance of accurate diagnosis. Thursday [...]

1803, 2023

The impact of diagnosis on children and adults: the search for a new balance

The diagnosis of a pathology such as hypertrophic cardiomyopathy is like an earthquake that upsets the balance of the person receiving it and of his entire family environment

1803, 2023

Reception and listening: the mission of the expert patient

Primo Botti, Aicarm volunteer, AICARM volunteer, works at the Cardiomyopathies Unit of Careggi: medical clinic, pavilion 13, second floor. His role is an integral part of the doctor-patient approach that is increasingly developing in this context and which consists of listening, talking to patients and giving them support.

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