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Success of the Cuori in Ascolto service: the answers to patients that the web and social networks cannot give

To help people diagnosed with cardiomyopathy, AICARM has activated a listening desk managed by volunteers and experts: Cuori in Ascolto. AICARM has trained a group of volunteers who, in addition to being carriers of a cardiomyopathy themselves, have acquired basic knowledge on the diagnosis, the different therapies and the pathogenesis of cardiomyopathies. I am able to actively listen to the patient or a family member and establish an empathetic relationship, creating contact between two people who share similar problems. 

December 16 2023|
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Life in your hands: the importance of cardiopulmonary resuscitation for families of patients with cardiomyopathy

Cardiac arrest is a reality feared by everyone, however people suffering from a form of cardiomyopathy are at greater risk than the general population. This dramatic event can happen suddenly, but thanks to Cardiopulmonary Resuscitation (CPR) and the use of the defibrillator, we can save lives and reduce the consequences of a lack of oxygenation to the brain and other vital organs.

November 13, 2023|
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Il Cuore Grande talks about it on RAI 2 at "Tutto il bello che c'è"

In the Rai2 program - "Tutto il bello che c'è" - on 7 September 2023, the book "The big heart - Stories of women and men facing the challenge of cardiomyopathies" was discussed. The program, hosted by journalist Silvia Vaccarezza, discussed the objective of contemporary medicine to put the patient at the center of its activity.

08 September 2023|
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Dangerous loves: Salvatore has a new bicycle

Everything is ready for the presentation of Il Cuore Grande, stories of women and men facing the challenge of cardiomyopathies, the book was born around the stories of twenty patients, or their families, edited by the journalist Laura D'Ettole and Professor Franco Cecchi, President of AICARM. Starting in October, the Association will give life to a series of initiatives, starting with the presentation to the public and the press (Villa Bardini, 14 October). As an anticipation for those who have not already had or have obtained the volume, which is distributed free of charge to members who request it, we are publishing one of the twenty testimonials.

August 28 2023|
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The patient expert in action: guidance and empathy of a "listening heart"

“My son was a promising athlete. He suddenly left us, in his sleep, one Saturday night ”says D. the father. “It was only later that we learned that he had an unknown and potentially lethal cardiomyopathy. His mother and brother are also carriers of the same disease and are being treated at this Center. We can say that his death saved their lives ”.

June 27 2023|
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Gloria's happiness: the dilated cardiomyopathy gene was not passed on to her children

Gloria's happiness: the dilated cardiomyopathy gene was not passed on to Laura D'Ettole's children It was a late afternoon in January 2021 when Gloria Capecchi received a message on her cell phone that left her in disbelief with happiness. Her words didn't come out, she couldn't tell her husband: her two children, Elia and Teresa, aged 15 and 10, didn't [...]

December 06 2021|
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