Gloria's happiness: the dilated cardiomyopathy gene was not passed on to her children

Gloria's happiness: the dilated cardiomyopathy gene was not transmitted to Laura D'Ettole's children It was a late afternoon in January 2021 when Gloria Capecchi receives a message on her mobile phone that leaves her incredulous with happiness. The words did not come out, she could not say it to her husband: her two children, Elijah and Teresa, aged 15 and 10, did not [...]

December 06 2021|

The cardiologist and his two hearts

My hypertrophic cardiomyopathy seen from both sides of the fence My story begins at the age of 12 on the occasion of a cardiological examination performed to be able to start tennis at a competitive level. On that visit I found a right branch block and a systolic murmur. The cardiologist, Dr. Poponcini, immediately thinks of an atrial defect and sends me to Florence [...]

May 17, 2020|

The story of Alessandro

My story begins with an ending…. April 1989… I was 16 when my mother passed away at the age of 39 for Dilated Cardiomyopathy, of which, at that time, I had only a minimal knowledge. In any case, inexorable, the pain "becomes aware" with the passing of time and with it also the ability of each of us to pigeonhole and [...]

May 17, 2020|

Barbara's story

That day it was scorchingly hot, I had been with my classmates to see a football match but then within those 30 minutes we had to go back to class so I was in quite a hurry ... all of a sudden I was out of breath .. . I just remember that I saw everything out of focus, I told my partner that I was sick and I fell to the ground ... I recovered quickly I came back [...]

May 16, 2020|

The history of EDO

I am a former amateur runner; I did a lot of Sunday races and some a bit longer, even running several marathons. The adventure with my heart began in 2009, when at a visit for sports fitness, the doctor found me of arrhythmias in the recovery phase, released me the suitability but invited me to make further investigations. I turn to the head of cardiology at the hospital of [...]

April 30 2020|

The story of a family

For our family it all started a few years ago when the mandatory electrocardiogram was introduced for children to be able to carry out even non-competitive sports activities. We didn't know then that something was going to start that we and our children would have to learn to live with. The electrocardiogram of the youngest daughter, who was then 7 years old, was found to be imperfect and before issuing a certificate of [...]

April 29 2020|

Fabrizio's story

My name is Fabrizio and I am 66 years old, I was born and live in Tuscany. I have lived with a non-obstructive Hypertrophic Cardiomyopathy (CMI) since birth. My medical history begins at the age of 18 with the intuition of a cardiologist from the hospital in my country, who takes me to the hospital in Siena to do an echocardiogram. I still remember that it was a huge machine that filled almost the entire [...]

April 29 2020|
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