Research and training, the Milan group

Communication and support for patients were the first commitment of the Milanese volunteers. Then the investigation into the management of the genetic test, its availability, how it was proposed and how the data was presented. And then the work on the topic of psychological support. And many training courses for expert patients that recorded a great participation

October 22, 2024|

I will never forget that day

AICARM continues the open line with the book “Il Cuore grande”, publishing stories of the experiences lived by patients since they were diagnosed with cardiomyopathy. The care of communication between doctor and patient plays a central role in the success of a therapeutic plan as much as drugs, says Rossella. Words heal, they can bring relief or despair. “I like to think that the medicine of the future will also focus on this”, she adds.

October 22, 2024|

The first defibrillator in Riccione park

A young sports enthusiast, the stop imposed by the disease, the commitment to assist those who have contracted it. Filippo Cupparoni, a city councilor of Riccione, tells his story. Having entered politics at 22, he fought for the city administration to install automatic external defibrillators. The first was placed in the largest public park in the city in front of a basketball court and near a soccer field.

October 22, 2024|

Dialogue between a smoker and his family doctor

Adolescents and smoking, the uncomfortable conditions when smoking is often talked about as a vice, but in reality it is an addiction. The tobacco industry exerting a strong influence on politicians, WHO data says that smoking causes around 8 million premature deaths every year. Anti-smoking centers and strategies to stop smoking and electronic cigarettes which are less harmful than traditional ones, but remain dangerous. These are the main topics of the thematic sheet on smoking created by Dr. Mauro Pecchioli, built according to the “Questions & Answers” ​​format. Below are the first seven questions. By clicking on the link at the bottom of the article you can read the other 9.

May 25, 2024|

Success of the Cuori in Ascolto service: the answers to patients that the web and social networks cannot give

To help people diagnosed with cardiomyopathy, AICARM has activated a listening desk managed by volunteers and experts: Cuori in Ascolto. AICARM has trained a group of volunteers who, in addition to being carriers of a cardiomyopathy themselves, have acquired basic knowledge on the diagnosis, the different therapies and the pathogenesis of cardiomyopathies. I am able to actively listen to the patient or a family member and establish an empathetic relationship, creating contact between two people who share similar problems. 

December 16 2023|

Life in your hands: the importance of cardiopulmonary resuscitation for families of patients with cardiomyopathy

Cardiac arrest is a reality feared by everyone, however people suffering from a form of cardiomyopathy are at greater risk than the general population. This dramatic event can happen suddenly, but thanks to Cardiopulmonary Resuscitation (CPR) and the use of the defibrillator, we can save lives and reduce the consequences of a lack of oxygenation to the brain and other vital organs.

November 13, 2023|

Il Cuore Grande talks about it on RAI 2 at "Tutto il bello che c'è"

In the Rai2 program - "Tutto il bello che c'è" - on 7 September 2023, the book "The big heart - Stories of women and men facing the challenge of cardiomyopathies" was discussed. The program, hosted by journalist Silvia Vaccarezza, discussed the objective of contemporary medicine to put the patient at the center of its activity.

08 September 2023|

Dangerous loves: Salvatore has a new bicycle

Everything is ready for the presentation of Il Cuore Grande, stories of women and men facing the challenge of cardiomyopathies, the book was born around the stories of twenty patients, or their families, edited by the journalist Laura D'Ettole and Professor Franco Cecchi, President of AICARM. Starting in October, the Association will give life to a series of initiatives, starting with the presentation to the public and the press (Villa Bardini, 14 October). As an anticipation for those who have not already had or have obtained the volume, which is distributed free of charge to members who request it, we are publishing one of the twenty testimonials.

August 28 2023|

The patient expert in action: guidance and empathy of a "listening heart"

“My son was a promising athlete. He suddenly left us, in his sleep, one Saturday night ”says D. the father. “It was only later that we learned that he had an unknown and potentially lethal cardiomyopathy. His mother and brother are also carriers of the same disease and are being treated at this Center. We can say that his death saved their lives ”.

June 27 2023|
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