Aicarm News, the Aicarm Newsletter

AICARM NEWS is the AICARM Onlus newsletter which aims to periodically provide information on the activities of our association and much more.

In fact, with this initiative we intend to tell stories of patients who are confronted with cardiomyopathy every day, offer a preview of news on scientific research and new therapies available, re-launch the main topics addressed and discussed in our training courses for expert patients.

In AICARM we are convinced that the well-informed patient or "expert patient", who is aware of his condition, not only from a clinical point of view, but also from a psychological one, must be the protagonist in the new relationship between patient and medical community. We believe that AICARM NEWS is a useful tool for patients, but also for their families, to help them implement a shared management of the therapeutic path and improve their relationship with cardiomyopathy.

AICARM NEWS is sent by e-mail to subscribers and can also be consulted on the AICARM website. To receive it by e-mail, subscribe to AICARM NEWS by filling out the form at the bottom of this page

2706, 2024

AICARM NEWS – June 2024

This month in AICARM NEWS: Information and useful advice for managing the diagnosis and treatment of cardiomyopathies, the importance of the doctor-patient relationship and active informed consent. The analysis on the use of drugs during pregnancy for women with cardiomyopathies, with the aim of minimizing risks for the unborn child, and a sheet on blood pressure monitoring to avoid misinformation. Lastly, we celebrate the expansion of our network with a new node in Sicily, in Ragusa.

2705, 2024

AICARM NEWS – May 2024

Cardiac surgery experiences in the last twenty years in Florence; a column on research into innovative drugs at institutions and pharmaceutical companies; the development of the first gene therapy for an inherited heart disease at the University of San Diego; everything you need to know about smoking. These are the themes of the May newsletter presented in the editorial of the President of Aicarm.

2704, 2024

AICARM NEWS – April 2024

The Assembly of April 18th represented an important step in the growth of our Association. The first annual report for 2023 has allowed us to define an organic and complete picture of the results achieved which fill us with great satisfaction. All data relating to the meeting can be consulted online. This newsletter reports the results of the course for expert patients in Milan, continues the column relating to drugs and publishes Dr. Torricelli's comment on the genetics survey already published in AICARM NEWS in March.

2203, 2024

AICARM NEWS – March 2024

the themes we propose in the March newsletter open the way to new lines of intervention in our commitment to providing all of you with in-depth and up-to-date information. The article on the "placebo and nocebo effect" kicks off an editorial line on the crucial topic of drugs. We have seen in recent weeks how important the experimentation and arrival of new generation products is, as well as their history and their full availability to patients. As regards Nadolol, for example, the shortage period for which AICARM Aps intervened several times has ended and the drug is once again available in pharmacies.

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