AICARM NEWS, is the AICARM APS newsletter that aims to periodically offer information on the activities of our association and much more.
In fact, with this initiative we intend to tell stories of patients who are confronted with cardiomyopathy every day, offer a preview of news on scientific research and new therapies available, re-launch the main topics addressed and discussed in our training courses for expert patients.
In AICARM we are convinced that the well-informed patient or "expert patient", who is aware of his condition, not only from a clinical point of view, but also from a psychological one, must be the protagonist in the new relationship between patient and medical community. We believe that AICARM NEWS is a useful tool for patients, but also for their families, to help them implement a shared management of the therapeutic path and improve their relationship with cardiomyopathy.
AICARM NEWS is sent via email to subscribers and can also be viewed on the AICARM website. To receive it by email, sign up to AICARM NEWS by filling out the form at the bottom of this page.
AICARM NEWS – December 2024
AICARM NEWS of December This issue celebrates the five years of the association. A key project of AICARM is presented: the Videoteca del cuore, a unique resource that combines scientific rigor and dissemination. Prof. Limongelli talks about the path taken to create the team dedicated to rare genetic diseases of the heart. AICARM organized the Masterclass of Florence, which offers a moment of dissemination, updating and discussion on the state of the art of cardiomyopathies. The event saw the participation of experts who provided a global and in-depth vision of the various topics concerning the disease, from modern technologies to genetic testing to therapies. Finally, some advice on how to best deal with the cold season
AICARM NEWS – November 2024
The November issue opens with the conference held in Florence on November 9. Last November, AICARM inaugurated the first Cardiomyopathy Day, an innovative event that combined medical training and sharing of patients' experiences. The initiative highlighted the importance of open dialogue in overcoming the fragility associated with the disease, offering a valuable space for listening and discussion. With this aim of growth and support, the association is launching a new monthly column edited by Dr. Niccolò Maurizi, a leading cardiologist. The "Medicine&Science" column aims to delve into the various cardiomyopathies on a monthly basis, explaining diagnostic and therapeutic aspects in clear, scientific language. The goal is to continue to develop an informed, aware, and supportive community, where patients and professionals can share knowledge and mutual support.
AICARM NEWS – October 2024
The October issue opens with the announcement of the conference on November 9 in Florence where the Cardiomyopathy Day will be held, an event organized with a new format. In the morning, there will be training courses for expert patients and Cardiopulmonary Resuscitation (CPR) for patients' relatives. In the afternoon, there will be the "Fai Posto al Cuore Talks", dialogues dedicated to patients with hypertrophic cardiomyopathy, with testimonials and interventions by experts, as well as readings from the book "Il Cuore grande" published by AICARM. The issue also includes stories from members and information on CPR courses for secondary school students, funded by AICARM.
AICARM NEWS – September 2024
The September issue of AICARM NEWS focuses on the three fundamental pillars of the association: volunteering, commitment to patients' rights and the value of scientific research. The crucial role of volunteers, particularly in the Cuori in Ascolto service, in providing support to patients is highlighted. The importance of AICARM's action in promoting national guidelines for issuing driving licenses to patients with cardiomyopathy is underlined. Finally, the Association's support for a study by the University of Pisa on the psychological well-being of young people with cardiomyopathy is mentioned.
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