AICARM NEWS, is the AICARM APS newsletter that aims to periodically offer information on the activities of our association and much more.
In fact, with this initiative we intend to tell stories of patients who are confronted with cardiomyopathy every day, offer a preview of news on scientific research and new therapies available, re-launch the main topics addressed and discussed in our training courses for expert patients.
In AICARM we are convinced that the well-informed patient or "expert patient", who is aware of his condition, not only from a clinical point of view, but also from a psychological one, must be the protagonist in the new relationship between patient and medical community. We believe that AICARM NEWS is a useful tool for patients, but also for their families, to help them implement a shared management of the therapeutic path and improve their relationship with cardiomyopathy.
AICARM NEWS is sent via email to subscribers and can also be viewed on the AICARM website. To receive it by email, sign up to AICARM NEWS by filling out the form at the bottom of this page.
AICARM NEWS – April 2025
AICARM NEWS of April The Italian Medicines Agency has reported the shortage of the drugs Ritmodan 100 and Ritmodan Retard 250, essential for the treatment of arrhythmias and also used in patients with hypertrophic obstructive cardiomyopathy. As has already happened in the past with Nadolol, AICARM has intervened promptly by collaborating with AIFA and the cardiology societies to monitor the situation, indicate alternative strategies and reduce the inconvenience for patients and doctors. The official AIFA press release with the methods of administration of Ritmodan 100 is available on the AICARM website. This edition also recounts the experience of “Pedalando con il Cuore”, an e-bike tour in the Crete Senesi, described by participants as a moment of rebirth and sharing. There is also space for the testimony of journalist Piero Meucci and the column by Niccolò Maurizi on the sense of guilt linked to the genetic transmission of heart disease.
AICARM NEWS – March 2025
AICARM NEWS of March The AICARM newsletter offers an update on key topics in cardiology and wellness. It opens with the report of the second webinar, which saw the participation of Professor Gianfranco Sinagra, strengthening the reputation of the association. This is followed by an in-depth analysis with Silvia Cecchi on the new regulations for disabled working patients, introduced by Decree 62/2024. Finally, it discusses Marco Bruscaglioni's initiative, which promotes physical activity with the e-bike tour "Pedalando con il cuore", a test for future events. All webinars will be available on the newsletter and website.
AICARM NEWS – February 2025
AICARM NEWS of February This second issue of 2025 of AICARM NEWS tells the story of a growing Association that strengthens its presence in the territory through concrete initiatives. The beating heart remains the commitment of the volunteers, who with the listening service offer fundamental support to patients and their families. The periodic appointment with the webinars sees an increasingly wider participation, while the "Comunità Cardioprotetta" project expands with the aim of creating a widespread network for cardiopulmonary resuscitation. For this reason, AICARM aims to build increasingly stronger synergies with institutions, schools and associations in the territory.
AICARM NEWS – January 2025
AICARM NEWS of January 2025 opens with important news for AICARM: the introduction of the first structured Program Plan to optimize resources and objectives, and concrete initiatives to support patients. Particular focus on the issue of Mavacamten, a drug not yet reimbursed in Italy, and on the new services at the Auxologico Institute for psychological support and sports certifications. The association also strengthens economic support for families to access care.
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