TRAINING COURSE – AREZZO 2023

Introduction

We are pleased to announce that the next Course for Expert Patients in hereditary myocardial diseases will be held in Arezzo on 9 September 2023.

The definition of Patient, according to the FDA (USA) is: any person with, or at risk of, a specific health condition, whether or not they receive therapy to prevent or treat that condition. The concept of "experienced patient"Was expressed in 1985 by Prof. David Tuckett, of the University of Cambridge (GB), who stated that medical treatment would have been more effective if doctors had considered patients as experts in their own pathologies. By themselves, the patient adds the perception of his own pathology, the changes that occur during the therapies, his skills, in close relationship with his doctor and with all the other health professions involved. He can also interact with other patients to share experiences.

The formation of the "experienced patient" of Hereditary diseases of the myocardium it also derives from the need for a new modality of interaction between doctor and patient, which takes into account the increased cultural level, the technological innovations that allow the dissemination of scientific information, and the sharing of diagnostic and therapeutic choices which is now constantly provided for in the Guidelines of the International scientific societies (Shared decision making). It is also expected to participate in the new operational and collaborative models between all the parties involved, in a process of mutual enrichment of knowledge, including the research and development of new drugs, with pharmaceutical companies and regulatory bodies (AIFA) in specific pathologies. .

The AICARM Association is convinced that it is necessary to contribute to the formation of the "experienced patient" of Hereditary diseases of the myocardium.

At the same time as the course for Expert Patients, a course dedicated to patients' families will be held in a room near the Aula Magna on the theme: Emergency management and theoretical and practical basis of Cardio Pulmonary Resuscitation (CPR)where family members of patients can register. The course will aim to provide the theoretical knowledge and practical skills in the field of cardio-pulmonary resuscitation with the use of the defibrillator (AED), according to the international ERC guidelines. The course will be held by our partner Paolo De Cillis (118, ANPAS, IRC and Regione Toscana accredited trainer) and will be developed in a first theoretical session and a second of practice on the dummy. At the end of the work, the certificate of attendance issued by our association will be delivered.