The 28st Course for Patients Experts in Myocardial Diseases organized by AICARM Onlus and realized with the contribution of the Cassa di Risparmio di Lucca Foundation will be held on 2023 January XNUMX in Viareggio. The course will be held in the meeting room of the Hotel Residence Esplanade in Viareggio.
The definition of Patient, according to the FDA (USA) is: any person with, or at risk of a specific health condition, whether or not they receive therapy to prevent or treat that condition. The concept of “expert patient” was expressed in 1985 by Prof. David Tucket, of the University of Cambridge (UK), who stated that medical treatments would be more effective if doctors considered patients as experts in their own pathologies. By himself, the patient adds the perception of his own pathology, the changes that occur during the therapies, his skills, in close relationship with his doctor and with all the other health professions involved. He can also interact with other patients to share experiences.
The training of the "expert patient" of hereditary diseases of the myocardium also derives from the need for a new modality of interaction between doctor and patient, which takes into account the increased cultural level, technological innovations that allow the dissemination of scientific information, and the sharing of choices diagnostic and therapeutic which is now constantly provided for in the guidelines of international scientific societies (Shared decision making). It is also expected to participate in the new operational and collaborative models between all the parties involved, in a process of mutual enrichment of knowledge, including the research and development of new drugs, with pharmaceutical companies and regulatory bodies (AIFA) in specific pathologies. . The AICARM Association is convinced that it is necessary to contribute to the training of the "expert patient" in hereditary diseases of the myocardium.
DISCOVER THE PROGRAM OF THE COURSE
SESSION I
Moderators: Dr. Giancarlo Casolo; Prof. Franco Cecchi
9:00 The heart and hereditary diseases of the muscle cardiac: causes, modality of presentation e clinical course
Dr. Alessia Argirò
9:20 Discussion
9:30 Distinguishing the different forms of cardiomyopathies in adults: the necessary tests
Dr. Giancarlo Casolo
9:50 Discussion
10:00 What is genetic testing of cardiomyopathies e the importance of genetic counseling
Prof. Lia Crotti
10:20 Discussion
10:30 AICARM activities for patients and theirs doctors and future projects
Dr. Valerio Pelini
10:50 Discussion
11:00 Coffee break
11:30 The psychological consequences of the diagnosis, of the therapies proposed for patients and their families. Any recommended actions
Dr. Guendalina Rossi
11:50 Discussion
12:00 Arrhythmias in cardiomyopathies: what's there know. Tools and procedures to treat arrhythmias (PM, transvenous and subcutaneous ICD, CRT; ablation). What are they and how are they used. The utility of remote monitoring
Dr. Maria Grazia Bongiorni
12:20 Discussion
12:30 Old and new drugs for different forms of cardiomyopathy
Prof. Iacopo Olivotto
12:50 Discussion
13:00 invasive techniques. Intervention for the treatment of obstructive hypertrophic cardiomyopathy: myectomy and mitral valve surgery; septal alcoholization
Prof. Franco Cecchi
13:20 Discussion
13:30 Light Lunch
SESSION II
Moderators: Marco Bruscaglioni; Augusto Marinelli; Paul Palma
14:30 To help patients and get to know theirs needs and the difficulties they encounter in the relationship with the disease. Proposals and free discussion on AICARM activities
16:00 Closing of the works
Use the links above to download the flyer and poster of the Viareggio course. Thank you
How to register?
The event is open to all and FREE (subject to availability).
Registration is subject to sending the registration form and will be accepted subject to availability of places. Download the registration form at this link: Enrollment form for the Viareggio course.
The registration form must be sent by mail to the address: at@mcrconference.it
For more information contact AICARM at info@aicarm.it or by telephone at +39 371 4533840