Viareggio 2023 – Course for Expert Patients in Hereditary Myocardial Diseases

The 28st Course for Patients Experts in Myocardial Diseases organized by AICARM Onlus and realized with the contribution of the Cassa di Risparmio di Lucca Foundation will be held on 2023 January XNUMX in Viareggio. The course will be held in the meeting room of the Hotel Residence Esplanade in Viareggio.

The definition of Patient, according to the FDA (USA) is: any person with, or at risk of a specific health condition, whether or not they receive therapy to prevent or treat that condition. The concept of “expert patient” was expressed in 1985 by Prof. David Tucket, of the University of Cambridge (UK), who stated that medical treatments would be more effective if doctors considered patients as experts in their own pathologies. By himself, the patient adds the perception of his own pathology, the changes that occur during the therapies, his skills, in close relationship with his doctor and with all the other health professions involved. He can also interact with other patients to share experiences.

The training of the "expert patient" of hereditary diseases of the myocardium also derives from the need for a new modality of interaction between doctor and patient, which takes into account the increased cultural level, technological innovations that allow the dissemination of scientific information, and the sharing of choices diagnostic and therapeutic which is now constantly provided for in the guidelines of international scientific societies (Shared decision making). It is also expected to participate in the new operational and collaborative models between all the parties involved, in a process of mutual enrichment of knowledge, including the research and development of new drugs, with pharmaceutical companies and regulatory bodies (AIFA) in specific pathologies. . The AICARM Association is convinced that it is necessary to contribute to the training of the "expert patient" in hereditary diseases of the myocardium.