We are pleased to announce the first edition of the Training Course for Expert Patients in myocardial diseases which will be held in Florence on November XNUMX and XNUMX, XNUMX in the Folco Portinari Room kindly made available by the Cassa di Risparmio di Firenze Foundation.

The definition of Patient, according to the FDA (USA) is: any person with, or at risk of a specific health condition, whether or not they receive therapy to prevent or treat that condition. The concept of "expert patient" was expressed in 1985 by Prof. David Tuckett, of the University of Cambridge (UK), who stated that medical treatments would be more effective if doctors considered patients as experts in their own pathologies. By themselves, the patient adds the perception of his own pathology, the changes that occur during the therapies, his skills, in close relationship with his doctor and with all the other health professions involved. He can also interact with other patients to share experiences.

Training "expert patients" in hereditary myocardial diseases also derives from the need for a new way of doctor-patient interaction, which takes into account the increased cultural level, the technological innovations that allow the dissemination of scientific information, and the sharing of diagnostic and therapeutic choices which is now constantly provided for in the guidelines of international scientific organizations (Shared decision making). The patient is also expected to participate in new operational and collaborative models between all the parties involved, in a process of mutual enrichment of knowledge, including new drug research and development for specific diseases, with pharmaceutical companies and regulatory bodies (AIFA).

AICARM Association is convinced that it is necessary to contribute to training of "expert patients" in hereditary myocardial diseases. Simultaneously with the first course for "Expert Patients", a first course dedicated to patients' families will be held at the headquarters of the AICARM Association, in via dello Studio 5, located a short distance from the Folco Portinari Room, on the theme: "Emergency Management and theoretical and practical bases of cardiopulmonary resuscitation ”, which patients' relatives can register for.

The course is part of the project "Promoting knowledge on cardiomyopathies and assistance to affected patients".

FIRST TRAINING COURSE FOR EXPERT PATIENTS IN HEREDITARY MYOCARDIAL DISEASES

Requirements for participation in the courses

The course for EXPERT PATIENTS IN HEREDITARY MYOCARDIAL DISEASES is reserved for membersof AICARM ETS ONLUS Association as of October XNUMX, XNUMX, and that they are up-to-date with the membership fee. The parallel course "Management of Emergencies and theoretical and practical bases of cardiopulmonary resuscitation" is reserved for one family member for each participant in the main training course. Participants of both courses must have and present their Green Pass as required by current regulations.

Documents for course registration

You can download the following documents in PDF format:

Scientific program of the training course for Expert Patients in hereditary myocardial diseases
Registration form
Privacy policy form

The registration procedure involves filling out and sending the Registration form and the Privacy information form to the following e-mail: info@aicarm.it. The number of participants expected to participate in the course for Expert Patients in hereditary myocardial diseases is set at XNUMX people. Course registration will be accepted only if the necessary requirements are met and according to the time order in which the form arrives. Should the number of requests exceed this limit, a waiting list will be compiled. The waiting list is valid for the next course or for any places made vacant.

For family members of participants, there are two courses on the topic of Emergency Management and theoretical and practical bases of cardiopulmonary resuscitation. One course will be held concurrently with the two sessions of the main course. The number of participants expected to participate in each session is 10 people, for a total of 20 people in the two sessions. Course registration will be accepted only if the necessary requirements are met and according to the time order in which the form arrives. Should the number of requests exceed this limit, a waiting list will be compiled. The waiting list is valid for the next course or for any places that are made vacant.