The interviews
Dr. Antonino Nicosia, director of Cardiology at the Giovanni Paolo II Hospital in Ragusa, who organized the days of in-person courses and discussions between doctors and patients held in Sicily, comments on the initiative's results.
The testimony of Marina Cacchioni, a psychologist and cardiomyopathy patient, who chose to volunteer with Cuori in Ascolto to help other patients.
Dr. Andrea Pedemonte, a sports medicine specialist, has accomplished an exceptional sporting feat to raise funds for AICARM and environmental causes.
AICARM Aps lawyer Elisabetta Renier highlights the fundamental legal aspects of the relationship between patient and doctor, which begins with clear, complete, and understandable information so that patients can make informed choices.
A long-time journalist and writer, especially an expert in economic information, Piero Meucci explains why he agreed to direct the AICARM newsletter since the Association was founded. The initial motivation is the willingness to contribute to the birth of new information projects, especially if these can be of help to people's daily lives. Then comes the satisfaction of having contributed to creating a reality that grows and becomes the point of reference for a large community.
From 1 January 2025, the disability reform provided for by Legislative Decree 62/2024 came into force, on an experimental basis in nine Italian cities. Disability is no longer seen only from a medical point of view, but also considering the psychosocial and biological spheres. The certifying doctor will have to draw up a much more detailed and complex certificate than in the past.
Offering listening, relief and information, this is the mission of the service “Cuori in ascolto” created three years ago that has exceeded 300 requests satisfied and is enhancing the IT tools. Paola Baldassarri, one of the AICARM volunteers who manage it, highlights the importance of the human relationship in a situation of fragility on the part of those who ask for help. “Knowing that, even just for a moment, someone feels less alone thanks to our help is the most gratifying thing,” she says.
AICARM has launched the "Cardioprotected Community" project with the aim of testing, evaluating, and disseminating a model for organizing cardiopulmonary resuscitation on a regional scale. Five pilot areas have been identified, involving local institutions that will then manage and expand them.
The Auxologico Cardiomyopathy Center in Milan has introduced two new services in collaboration with AICARM: psychological support for patients with cardiomyopathy and their families and non-competitive sports certification.
Mavacamten is a drug that represents real and immediate hope and an alternative to surgery for many patients with hypertrophic obstructive cardiomyopathy.
