Patient stories

Dialogue between a smoker and his family doctor

Adolescents and smoking, the uncomfortable conditions when smoking is often talked about as a vice, but in reality it is an addiction. The tobacco industry exerting a strong influence on politicians, WHO data says that smoking causes around 8 million premature deaths every year. Anti-smoking centers and strategies to stop smoking and electronic cigarettes which are less harmful than traditional ones, but remain dangerous. These are the main topics of the thematic sheet on smoking created by Dr. Mauro Pecchioli, built according to the “Questions & Answers” ​​format. Below are the first seven questions. By clicking on the link at the bottom of the article you can read the other 9.

Success of the Cuori in Ascolto service: the answers to patients that the web and social networks cannot give

To help people diagnosed with cardiomyopathy, AICARM has activated a listening desk managed by volunteers and experts: Cuori in Ascolto. AICARM has trained a group of volunteers who, in addition to being carriers of a cardiomyopathy themselves, have acquired basic knowledge on the diagnosis, the different therapies and the pathogenesis of cardiomyopathies. I am able to actively listen to the patient or a family member and establish an empathetic relationship, creating contact between two people who share similar problems. 

Il Cuore Grande talks about it on RAI 2 at "Tutto il bello che c'è"

In the Rai2 program - "Tutto il bello che c'è" - on 7 September 2023, the book "The big heart - Stories of women and men facing the challenge of cardiomyopathies" was discussed. The program, hosted by journalist Silvia Vaccarezza, discussed the objective of contemporary medicine to put the patient at the center of its activity.

Dangerous loves: Salvatore has a new bicycle

Everything is ready for the presentation of Il Cuore Grande, stories of women and men facing the challenge of cardiomyopathies, the book was born around the stories of twenty patients, or their families, edited by the journalist Laura D'Ettole and Professor Franco Cecchi, President of AICARM. Starting in October, the Association will give life to a series of initiatives, starting with the presentation to the public and the press (Villa Bardini, 14 October). As an anticipation for those who have not already had or have obtained the volume, which is distributed free of charge to members who request it, we are publishing one of the twenty testimonials.

The patient expert in action: guidance and empathy of a "listening heart"

“My son was a promising athlete. He suddenly left us, in his sleep, one Saturday night ”says D. the father. “It was only later that we learned that he had an unknown and potentially lethal cardiomyopathy. His mother and brother are also carriers of the same disease and are being treated at this Center. We can say that his death saved their lives ”.

Gloria's happiness: the dilated cardiomyopathy gene was not passed on to her children

Gloria's happiness: the dilated cardiomyopathy gene was not transmitted to Laura D'Ettole's children It was a late afternoon in January 2021 when Gloria Capecchi receives a message on her mobile phone that leaves her incredulous with happiness. Her words did not come out, she could not say it to the [...]

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