Success of the Cuori in Ascolto service: the answers to patients that the web and social networks cannot give
To help people diagnosed with cardiomyopathy, AICARM has activated a listening desk managed by volunteers and experts: Cuori in Ascolto. AICARM has trained a group of volunteers who, in addition to being carriers of a cardiomyopathy themselves, have acquired basic knowledge on the diagnosis, the different therapies and the pathogenesis of cardiomyopathies. I am able to actively listen to the patient or a family member and establish an empathetic relationship, creating contact between two people who share similar problems.
Life in your hands: the importance of cardiopulmonary resuscitation for families of patients with cardiomyopathy
Cardiac arrest is a reality feared by everyone, however people suffering from a form of cardiomyopathy are at greater risk than the general population. This dramatic event can happen suddenly, but thanks to Cardiopulmonary Resuscitation (CPR) and the use of the defibrillator, we can save lives and reduce the consequences of a lack of oxygenation to the brain and other vital organs.
Il Cuore Grande talks about it on RAI 2 at "Tutto il bello che c'è"
In the Rai2 program - "Tutto il bello che c'è" - on 7 September 2023, the book "The big heart - Stories of women and men facing the challenge of cardiomyopathies" was discussed. The program, hosted by journalist Silvia Vaccarezza, discussed the objective of contemporary medicine to put the patient at the center of its activity.
Dangerous loves: Salvatore has a new bicycle
Everything is ready for the presentation of Il Cuore Grande, stories of women and men facing the challenge of cardiomyopathies, the book was born around the stories of twenty patients, or their families, edited by the journalist Laura D'Ettole and Professor Franco Cecchi, President of AICARM. Starting in October, the Association will give life to a series of initiatives, starting with the presentation to the public and the press (Villa Bardini, 14 October). As an anticipation for those who have not already had or have obtained the volume, which is distributed free of charge to members who request it, we are publishing one of the twenty testimonials.
Il Cuore Grande: twenty tales of pain and reality, of courage and rebirth
Il Cuore Grande, stories of women and men facing the challenge of cardiomyopathies: this book was born around the stories of twenty patients, or their families, who belong to Aicarm (Italian cardiomyopathy association) and wanted to tell their stories.
The patient expert in action: guidance and empathy of a "listening heart"
“My son was a promising athlete. He suddenly left us, in his sleep, one Saturday night ”says D. the father. “It was only later that we learned that he had an unknown and potentially lethal cardiomyopathy. His mother and brother are also carriers of the same disease and are being treated at this Center. We can say that his death saved their lives ”.
Gloria's happiness: the dilated cardiomyopathy gene was not passed on to her children
Gloria's happiness: the dilated cardiomyopathy gene was not transmitted to Laura D'Ettole's children It was a late afternoon in January 2021 when Gloria Capecchi receives a message on her mobile phone that leaves her incredulous with happiness. Her words did not come out, she could not say it to the [...]
Covid comes when you least expect it
The testimony of Dino, 45 years old and has hypertrophic cardiomyopathy, who successfully underwent myectomy over 10 years ago. Finally recovered from Covid, he can't wait to enjoy spring on a bicycle.
The secret of Giulia, mother after the transplant
Dealing with pregnancy with its heart disease? No, look forget it. Instead, Chiara was born a year ago. Healthy and full of life.
The story of Marco A
About 10 years ago I regularly practiced sports (triathlon) and all the sports doctor visits that I had performed until then had always given me positive feedback, with the issue of the certificate of fitness for competitive activity.