The cardiologist and his two hearts

My hypertrophic cardiomyopathy seen from both sides of the fence My story begins at 12 years old on the occasion of a cardiological examination carried out in order to start tennis at a competitive level. In that visit I was found to have a right bundle branch block and a systolic murmur. The cardiologist, Dr. Poponcini, immediately thinks of an atrial septal defect and sends me to Florence to [...]

May 17, 2020|

The story of Alessandro

My story begins with an end…. April 1989 ... I was 16 years old when my mother passed away at the age of 39 due to Dilated Cardiomyopathy, of which, at that moment, I had only minimal knowledge. In any case, inexorably, the pain becomes "aware" with the passing time and with it also the ability of each of us to pigeonhole and [...]

May 17, 2020|

Barbara's story

That day it was scorching hot, I had been with my classmates to watch a football match but then within those 30 minutes we had to return to class so I was in quite a hurry... all of a sudden I was out of breath... I only remember that I saw everything blurry, I told my partner that I was sick and I fell to the ground... I recovered quickly and went back [...]

May 16, 2020|

The history of EDO

I am a former amateur runner; I did many Sunday races and some a little longer, even running several marathons. The adventure with my heart began in 2009, when during a sports fitness visit, the doctor found I had arrhythmias in the recovery phase, released me as fit but invited me to carry out further tests. I turn to the head of cardiology at the hospital [...]

April 30 2020|

The story of a family

For our family it all started a few years ago when the mandatory electrocardiogram was also introduced for children to be able to carry out non-competitive sporting activities. We didn't know, then, that something would begin that we and our children would have to learn to live with. The electrocardiogram of the youngest daughter, who was 7 years old at the time, was found to be imperfect and before issuing a certificate of [...]

April 29 2020|

Fabrizio's story

My name is Fabrizio and I am 66 years old, I was born and live in Tuscany. I have been living with non-obstructive Hypertrophic Cardiomyopathy (HCI) since birth. My medical history began at the age of 18 with the intuition of a cardiologist from the hospital in my town, who took me to the hospital in Siena to do an echocardiogram. I still remember that it was a huge machine that filled almost the entire [...]

April 29 2020|

The story of Titti

It was a hot morning in the summer of 2010, the sky was clear, the sun was scorching and in front of me was the motorway that took us to Civitavecchia. It would have been a great family vacation if something had gone differently. Hi, I'm Concetta and I'll tell you the story of my hypertrophic heart disease. I was traveling peacefully in the car with my family when suddenly my father, who was driving, [...]

April 29 2020|

Dino's story

My name is Dino, I am 44 years old, I discovered that I had heart problems at the age of 23, during a visit to qualify for competitive activity at a sports medicine centre. I had a rather marked "murmur" and the stress test at the time revealed heart rate anomalies during effort and during recovery: I still remember very well the great effort in going down [...]

April 29 2020|

The story of Bruna

Hi everyone, I'm Bruna and I'm 25 years old. Telling a personal life story with all her emotions both positive and negative is never easy, but I will try. I will try for you, for those who have recently discovered that they have cardiomyopathy, for those who have already known it for many years and think they are alone, and for those [...]

April 22 2020|
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