News on the latest discoveries and experiments for the treatment and diagnosis of Cardiomyopathies.

Cardiac arrest: how to improve complication-free survival after cardiopulmonary resuscitation (CPR)

Reflections on a study appearing in the Journal of the American College of Cardiology which reports the evolution of the incidence, management and prognosis of AC in athletes in France. The complication-free survival rate tripled. In Italy it is necessary to extend CPR training programs and increase the installation of AEDs, also involving middle and high school students and installing AEDs in all workplaces as well as in sports.

January 29 2024|

Green light for Mavacamten: the compassionate use phase begins

Mavacamten is the first approved drug of a new class of drugs, which reduce the activity of "cardiac myosin", a protein fundamental for the contraction of heart cells, which plays a decisive role in creating obstruction to the outflow of blood left ventricle in most patients with hypertrophic obstructive cardiomyopathy. A few weeks ago, the activation of the Compassionate Use Program was officially published on the AIFA website.

December 16 2023|

Shortage of the drug Nadolol: AICARM requests the intervention of AIFA

The shortage of Nadolol in pharmacies is increasingly worrying doctors and patients and for this reason AICARM APS has decided to contact the director of the Italian Medicines Agency Domenico Di Giorgio to request urgent intervention. In a letter sent on 4 December 2023, President Franco Cecchi, together with the pharmacologist Alessandro Mugelli, asked AIFA to take action to ensure the availability of Nadolol in pharmacies (including by importing it from abroad) and to request its production from the Institute Military Pharmaceutical of Florence.

December 13 2023|

Life in your hands: the importance of cardiopulmonary resuscitation for families of patients with cardiomyopathy

Cardiac arrest is a reality feared by everyone, however people suffering from a form of cardiomyopathy are at greater risk than the general population. This dramatic event can happen suddenly, but thanks to Cardiopulmonary Resuscitation (CPR) and the use of the defibrillator, we can save lives and reduce the consequences of a lack of oxygenation to the brain and other vital organs.

November 13, 2023|

NADOLOL, import of the drug and galenic preparation

According to AIFA, Nadolol will return to the market next March 2024. In the meantime, patients who use Nadolol can purchase it abroad or use the galenic preparation prepared by an Italian pharmacy that has the active ingredient and a laboratory equipped for these preparations. The first useful addresses of pharmacies contacted by our volunteers in the cities of Milan and Florence are given.

November 12, 2023|

Nadolol can be purchased in Switzerland and the Vatican

AICARM, aware of the inconvenience caused by the lack of nadolol, has taken action to identify suppliers outside the national territory. We managed to find two suppliers, thus offering an immediate solution to the people who hire it. For those who decide to opt for this solution, it is important to know that a valid prescription is required, and the costs of the drug and its shipping must be covered.

October 28, 2023|

Magnetic resonance imaging why, how and when: the ten most frequently asked questions by patients

Why cardiac MRI is prescribed, how it is carried out and what it is used for: these are just some of the questions answered by Dr. Chiara Zocchi, who works with Dr. Maurizio Pieroni, head of the cardiomyopathies and rare heart diseases clinic of the San Donato hospital. It is a very useful decalogue for the patient who is asked to undergo this test, because it clarifies the meaning and its dynamics point by point.

October 21, 2023|
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