In the Rai2 program - "Tutto il bello che c'è" - on 7 September 2023, the book "The big heart - Stories of women and men facing the challenge of cardiomyopathies" was discussed. The program, hosted by journalist Silvia Vaccarezza, discussed the objective of contemporary medicine to put the patient at the center of its activity.
Our heart is an extraordinary organ. It works continuously, pumping oxygen-rich blood to every cell in our body. We talk about cardiac arrest when, suddenly, the heartbeat stops ("Ventricular fibrillation"), its pump function ceases and the blood flow to our organs is interrupted. Without any intervention, the brain, heart and other vital organs [...]
AICARM joins ERN GUARD-Heart, a European virtual network to facilitate access to the diagnosis and treatment of rare and complex heart diseases. ERNs, the result of a European Commission project, are virtual networks involving healthcare institutions across Europe. They aim to address complex or rare diseases and conditions that require highly specialized care and concentration of knowledge and resources.
The definition of Patient, according to the FDA (USA) is: any person with, or at risk of, a specific health condition, whether or not receiving therapy to prevent or treat that condition. The concept of the "expert patient" was expressed in 1985 by Prof. David Tucket, of the University of Cambridge (GB), who stated that medical treatments would be more effective if doctors [...]
Cardiomyopathy is a family of diseases that affect the heart muscle: "cardio" means heart, "mine" means muscle and "patia" means disease. It is not a specific disease, but a group of diseases that affect the structure of the heart and reduce its ability to pump blood throughout the body.
Dr. Gabriele Castelli, Cardiomyopathies Unit - AOU Careggi Florence Dr Gabriele Castelli Idiopathic Dilated Cardiomyopathy has always been considered a very serious condition, with mortality rates comparable to those of some of the most important neoplastic diseases. In the 80s, 5-year survival was less than 50%! In approximately half of the cases the death was attributable to [...]
Dear members, donors, friends and supporters of AICARM, with great pleasure I inform you that the administrative process, which began this spring, relating to the legal recognition of our association has been successfully concluded. On 14 December 2020, AICARM Onlus was registered at no. 1130 of the Tuscany Region register of legal persons. For our association it is an important result that opens up the possibility of [...]