It contains the categories and articles with contents related to the various Aicarm activities or events

The first Italian Report on cardiomyopathies presented in the Senate

On 19 March 2024, the Report on cardiomyopathies in Italy was presented at the Senate of the Republic, entitled “Cardiomyopathies Matter. A roadmap to improve the diagnosis and care of patients with cardiomyopathy in Italy". The objective of this important event was dictated by the desire to contribute to improving the diagnosis and care of patients with cardiomyopathy in Italy, to raise public awareness and ensure that these pathologies receive the right attention from the legislator, the decision makers of the national healthcare system and information channels at European and national level.

March 27 2024|

Volunteers doubled in Careggi, supporting patients after the "tsunami" of the diagnosis

Aicarm operates in the context of a region that is very rich in terms of volunteering, which is an enormous social capital. At the cardiomyopathy diagnosis and treatment unit in Careggi, the number of volunteers who make themselves available to patients facing their first diagnosis or going there for a check-up is increasing. They inform them and make themselves available to them for every need. It is a service of the same nature as Hearts in Listening, but with direct human contact. 

February 20 2024|

Success of the Cuori in Ascolto service: the answers to patients that the web and social networks cannot give

To help people diagnosed with cardiomyopathy, AICARM has activated a listening desk managed by volunteers and experts: Cuori in Ascolto. AICARM has trained a group of volunteers who, in addition to being carriers of a cardiomyopathy themselves, have acquired basic knowledge on the diagnosis, the different therapies and the pathogenesis of cardiomyopathies. I am able to actively listen to the patient or a family member and establish an empathetic relationship, creating contact between two people who share similar problems. 

December 16 2023|

Green light for Mavacamten: the compassionate use phase begins

Mavacamten is the first approved drug of a new class of drugs, which reduce the activity of "cardiac myosin", a protein fundamental for the contraction of heart cells, which plays a decisive role in creating obstruction to the outflow of blood left ventricle in most patients with hypertrophic obstructive cardiomyopathy. A few weeks ago, the activation of the Compassionate Use Program was officially published on the AIFA website.

December 16 2023|

AICARM courses: great demand, soon also online training activities

2024 will see AICARM still committed to disseminating knowledge on cardiomyopathies, we will organize other courses for expert patients during the year. However, we have seen that there is a growing demand for knowledge about cardiomyopathies. And providing answers with in-person courses is not enough to cover patients' requests and, for this reason, next year AICARM will combine the in-person courses with other training activities carried out online. 

December 13 2023|

Aicarm party at Villa Bardini with an exceptional godmother: Pamela Villoresi

The objective was the presentation of the volume Il Cuore Grande to the representatives of the institutions, sponsors and supporters of Aicarm. But the event was transformed into a great celebration for the four years of life and activity of the Association in the setting of Villa Bardini, the exceptional terrace on the hill recovered for the use of Florentines and visitors and restored thanks to the CR Firenze Foundation which manages the spaces through the Bardini and Peyron Monumental Parks Foundation.

November 15, 2023|

Training course for expert patients and Cardiopulmonary Resuscitation course – Florence 25 November 2023

We are pleased to announce the third edition of the training course for expert patients in myocardial diseases which will be held in Florence on 25 November 2023 at the Auditorium of the CR Firenze Foundation - Via Folco Portinari, 5 - Florence. At the same time, a training course for Cardiopulmonary Resuscitation families will be held at the AICARM APS headquarters.

November 02, 2023|

Cardiomyopathy Patient Council Meeting & Industry Round Table Meeting

The Cardiomyopathy Patient Council Meeting & Industry Round Table Meeting will take place in Florence on Saturday 30 September, Sunday 1 and Monday 2 October. AICARM welcomes all participants in this important meeting organized by GGH.

27 September 2023|

Il Cuore Grande talks about it on RAI 2 at "Tutto il bello che c'è"

In the Rai2 program - "Tutto il bello che c'è" - on 7 September 2023, the book "The big heart - Stories of women and men facing the challenge of cardiomyopathies" was discussed. The program, hosted by journalist Silvia Vaccarezza, discussed the objective of contemporary medicine to put the patient at the center of its activity.

08 September 2023|
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