The importance of informing on new therapies for cardiomyopathies
Cardiomyopathies are a group of diseases that affect the heart muscle, causing impaired function of the heart muscle and even dangerous complications. Despite the efforts of medical research, to date there is no definitive cure. It is therefore crucial to disseminate precise scientific data on progress in the development of new therapies, which is one of the main activities in which AICARM has been engaged since its establishment.
Misinformation can fuel false hopes or even discourage patients from adhering to available treatments. On the contrary, communicating the results of studies, both positive and negative, in a transparent way allows you to maintain a realistic approach but at the same time encourages you to persevere in your research.
In addition to new therapies created with specific new generation drugs, research is also focusing on gene therapies that aim to correct the genetic mutations underlying some forms of cardiomyopathy. Recent preclinical studies have obtained encouraging results, but it is essential not to overestimate the timing of large-scale application.
In summary, correct and responsible scientific communication on research progress is of crucial importance, particularly in this historical period in which research innovations that were unimaginable until recently are appearing. Therefore, informing correctly on the one hand avoids generating false expectations in patients, while on the other it supports funding and efforts of the scientific community towards increasingly ambitious goals to defeat these serious pathologies.
For these reasons AICARM inaugurates a new column which will present the news and developments for the treatment of cardiomyopathies. We will present works that come from institutions and pharmaceutical companies, both Italian and foreign, always with authority and independence from the market, and in favor of patients with cardiomyopathy and their doctors.
New scientific evidence: the Mediterranean diet is good for the heart
May is a special month for AICARM: we dedicate it to better understanding the benefits of nutrition in cardiomyopathy. However, we will not do it alone, but accompanied by one of the major international experts in this field, namely Dr. Sara Farnetti, with whom we will be able to discuss in the webinar on May 21st. Absolutely not to be missed.
Hereditary Cardiomyopathies: When Feelings of Guilt Take Over
Hereditary heart disease can cause patients to feel guilty, which can affect their quality of life, especially when it comes to parenting choices. This is also confirmed by a recent study published in the Journal of the American Heart Association, which analyzed the emotional impact of hereditary heart disease on 128 patients, with an average age of 51. With the right emotional and medical support, it is possible to overcome feelings of guilt, make informed choices, and build a life that reflects one's values.
Alcohol and the Heart: How to Stay Healthy
When alcohol consumption becomes excessive and prolonged over time, it can have serious consequences for the heart. One of these is alcoholic cardiomyopathy, a potentially life-threatening disease in which prolonged consumption of large amounts of alcohol weakens the heart muscle. The heart becomes less effective at pumping blood, leading, if left untreated, to heart failure. The good news? This condition is preventable and, in many cases, even reversible with the right lifestyle changes. Let's find out together what you need to know.
Wearable Devices: The Era of Personalized Care
Wearable digital health technologies, such as smartwatches, fitness trackers and specialized medical devices, are revolutionizing healthcare. They enable real-time monitoring of important parameters for the heart, diabetes and epilepsy control. There are many advantages, thanks to early detection and the possibility of personalized care. The disadvantages include data management and protection and the possibility of false alarms. There is a need for improved accessibility, establishing standards and, above all, solid training for patients and doctors.
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