Aicarm News, the Aicarm Newsletter

AICARM NEWS is the AICARM Onlus newsletter which aims to periodically provide information on the activities of our association and much more.

In fact, with this initiative we intend to tell stories of patients who are confronted with cardiomyopathy every day, offer a preview of news on scientific research and new therapies available, re-launch the main topics addressed and discussed in our training courses for expert patients.

In AICARM we are convinced that the well-informed patient or "expert patient", who is aware of his condition, not only from a clinical point of view, but also from a psychological one, must be the protagonist in the new relationship between patient and medical community. We believe that AICARM NEWS is a useful tool for patients, but also for their families, to help them implement a shared management of the therapeutic path and improve their relationship with cardiomyopathy.

AICARM NEWS is sent by e-mail to subscribers and can also be consulted on the AICARM website. To receive it by e-mail, subscribe to AICARM NEWS by filling out the form at the bottom of this page
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2210, 2023

AICARM NEWS – October 2023

In the June 2023 issue of AICARM NEWS, the book "Il Cuore Grande" is presented, which collects the story of twenty people and families with cardiomyopathy. It continues with the experience of the AICARM volunteer at the Careggi cardiomyopathy clinic and the Masterclass Hypertrophic cardiomyopathy and cardiac amyloidosis held in Florence at the beginning of June. The date of the next course for expert patients has been announced, to be held in Arezzo on 9 September.

2808, 2023

AICARM NEWS – July – August 2023

In the June 2023 issue of AICARM NEWS, the book "Il Cuore Grande" is presented, which collects the story of twenty people and families with cardiomyopathy. It continues with the experience of the AICARM volunteer at the Careggi cardiomyopathy clinic and the Masterclass Hypertrophic cardiomyopathy and cardiac amyloidosis held in Florence at the beginning of June. The date of the next course for expert patients has been announced, to be held in Arezzo on 9 September.

507, 2023

AICARM NEWS – June 2023

In the June 2023 issue of AICARM NEWS, the book "Il Cuore Grande" is presented, which collects the story of twenty people and families with cardiomyopathy. It continues with the experience of the AICARM volunteer at the Careggi cardiomyopathy clinic and the Masterclass Hypertrophic cardiomyopathy and cardiac amyloidosis held in Florence at the beginning of June. The date of the next course for expert patients has been announced, to be held in Arezzo on 9 September.

1405, 2023

AICARM NEWS – May 2023

The May 2023 issue of AICARM NEWS inaugurates a new way of offering information and services to members, their families and all interested parties. It contains a sort of vademecum for all patients who turn to specialists to identify - if any - the genetic origin of their cardiomyopathy and ask themselves questions about the times and methods of counseling, the characteristics and effectiveness of the tests and the what to do after possibly identifying a genetic mutation.

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