Drug Shortage, Let's Tackle the Ritmodan Emergency
Dear friends of AICARM,
The Italian Medicines Agency has reported a shortage of Ritmodan100 and Ritmodan Retard 250, essential drugs for the prevention and treatment of arrhythmias, and used according to guidelines, also in patients with Hypertrophic Obstructive Cardiomyopathy, produced by the German pharmaceutical company Cheplapharm Arzneimittel Gmbh. This is not the first time that we have faced the case of a blackout in the supply of an essential component in the treatment of heart disease.
Ritmodan Shortage: AIFA Monitors, AICARM Defends Patient
In recent days, the Italian Medicines Agency has communicated the shortage of Ritmodan used for the prevention and treatment of arrhythmias. The Agency reports that supplies are expected to resume at the end of the summer and in the meantime has implemented a strategy based on monitoring the remaining stocks and on an alternative dosage. AICARM was among the first to report the shortage and is closely following the situation to meet the needs of patients.
When sport together with others is part of the cure
When sport together with others is part of the cure
Great success for “Pedalando con il cuore”, a two-day e-bike tour through the Crete Senesi organized by AICARM. The pilot project involved 10 participants, 7 of whom had Cardiomyopathy and 3 of them with ICD, invited with specific criteria and followed by specialized doctors. It was not just a sporting event – say three participants, Marco, Sandro and Salvatore – but a moment of authentic sharing, of rebirth, of hope. It is the demonstration that some patients with hypertrophic cardiomyopathy can perform even moderate physical activity.
The beauty of a project that grows to help people
The beauty of a project that grows to help people
A long-time journalist and writer, especially an expert in economic information, Piero Meucci explains why he agreed to direct the AICARM newsletter since the Association was founded. The initial motivation is the willingness to contribute to the birth of new information projects, especially if these can be of help to people's daily lives. Then comes the satisfaction of having contributed to creating a reality that grows and becomes the point of reference for a large community.
Hereditary Cardiomyopathies: When Feelings of Guilt Take Over
Hereditary heart disease can cause patients to feel guilty, which can affect their quality of life, especially when it comes to parenting choices. This is also confirmed by a recent study published in the Journal of the American Heart Association, which analyzed the emotional impact of hereditary heart disease on 128 patients, with an average age of 51. With the right emotional and medical support, it is possible to make informed choices and build a life that reflects one's values.
FRIENDS of AICARM, record donations and 2024×5 in 1000
Every donation to AICARM is a gesture that contributes to supporting patients with cardiomyopathy, promoting training, encouraging research and building a network of experts and knowledge for the benefit of all. Thanks to those who donate, AICARM can continue to be a point of reference for living with the disease.
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Webinar dedicated to patients' rights
An opportunity to clarify with experts and witnesses on disability, driving licenses, concessions and Aicarm initiatives to protect patients. A free webinar open to all, with Silvia Cecchi and Valerio Pelini. Moderated by Dr. Niccolò Maurizi.
Wednesday 23 April 18.30 hours on Zoom platform.
CPR Course in Florence on May 10th
Join the course of Cardiopulmonary Resuscitation and use of the defibrillator to be held Saturday May 10 – starting from 8.30 – at the Aicarm headquarters in Florence intended for family members of patients with Cardiomyopathy.
The course is free and will be held by Paolo De Cillis and plans to work on the ground with a mannequin to practice resuscitation maneuvers, and also the use of the defibrillator.
Questionnaire for scientific research The floor to parents
AICARM APS, in collaboration with the University of Pisa and the AOU Careggi, has started the project A word from parents: family, children and cardiomyopathy, aimed at investigating the experiences of families with children affected by cardiomyopathy (aged 6 and up). The goal is to develop psychological support tools and improve communication between doctors, patients and caregivers.
To participate, parents are invited to fill out the anonymous questionnaire at the link: https://shorturl.at/BOzIU. The answers will help outline concrete strategies to improve the quality of life of the families involved.
Aicarm members meeting on May 7th in Florence
📆 The annual meeting of AICARM members is called for April 27th at 22.00 pm in first call and for May 7th at 17.00 pm in second call at the Association's headquarters. To facilitate member participation residents in places even very far from the Florence headquarters, it was decided to use the Zoom platform to allow, as provided for by the statute, to hold the meeting electronically. The link for participation will be sent to members following the declaration of participation.
AICARM NEWS
Monthly newsletter
Florence court registration
n ° 6148 of 27/7/2021
SITE MANAGER
Piero Meucci
AICARM APS periodically publishes AICARM NEWS, the AICARM newsletter. You can receive upcoming releases directly in your email inbox by filling out the form below. To consult the issues released, consult the page: AICARM NEWS, the AICARM newsletter.
