Amsterdam, September 28, 2022
The list of European Patient Advocacy Groups (ePAGs) in ERN GUARD-Heart increases. The candidacies of two Italian associated partners have recently been approved: the Italian Association of Congenital Heart Disease Children and Adults (AICCA Onlus), represented by Giovanna Campioni and AICARM ONLUS, represented by Matteo Pinciroli. There are now 14 associate ePAG members and 5 support partners included in ERN GUARD-Heart. New patient organizations, especially from EU Member States that are not yet represented with a patient organization in the ERN (i.e. Belgium, Czech Republic, Hungary, Croatia, Ireland, Poland and Portugal), are very welcome. Patient organizations from Member States with an affiliated partner may also present patient representatives. For more information, contact the project management team (email@example.com) or Ruth Biller (firstname.lastname@example.org) president of ERN GUARD Heart ePAGs.