The positive power of shared experiences
The positive power of shared experiences
Dear friends of AICARM,
many new things in these last weeks of the year. By giving life to the first Cardiomyopathy Day, at the beginning of November, we tested the new format that combines the traditional space for updating and training with the socialization of the experiences and reflections of patients who are an important heritage of our Association.
A new space for listening and exchange
AICARM has inaugurated a new information and training format in Florence.
Cardiomyopathy Day involved doctors, patients and family members in two distinct sections: the in-depth and updating interventions of experts and the testimonies and exchange of ideas and experiences of patients.
While the CPR courses continued at the headquarters.
Recipes for the psychological well-being of young patients
Recipes for the psychological well-being of young patients
Prof. Martina Smorti, Professor of Developmental Psychology at the University of Pisa, conducted, in collaboration with the Cardiomyopathy Unit of Careggi and with the support of AICARM, a survey on the psychological impact of the disease on young patients. Support groups were created for late adolescents and young adults in which it was evident that sharing the disease with other children is useful for promoting communication about cardiomyopathy even in broader social relationships.
Milan students at CPR school
Milan students at CPR school
A project resulting from the collaboration between AICARM, the Auxologico Institute of Milan and Fapy srl aims to promote knowledge and training in the field of cardiopulmonary resuscitation and the use of the defibrillator.
Aimed at young people between 16 and 18 years old, the project is aimed at high schools in Milan, and should involve ten classes of 20-25 students. Three hours of the school program are planned for this activity.
Diagnosis and treatment of cardiac amyloidosis
Diagnosis and treatment of cardiac amyloidosis
The population is aging. Faced with this change in average age, even those who deal with cardiomyopathies have seen many more patients arrive in recent decades with pathologies partly related to the aging of the heart. Among these, cardiac amyloidosis is certainly the most important. It is very important to identify the disease in the large number of patients with thickened hearts due to age.
Help us support patients with cardiomyopathy
Masterclass on Hypertrophic Obstructive Cardiomyopathy, scheduled in Florence on November 26 and 27
The Masterclass Hypertrophic Obstructive Cardiomyopathy, held in Florence, aims to provide participants with a comprehensive and up-to-date overview of the pathophysiology, diagnosis and treatment of this disease, based on the experience of over 40 years of the Careggi University Hospital. The masterclass, enriched by the participation of experts from various Italian institutions, ranges from basic sciences to cardiac surgery, from genetic diagnosis to new pharmacological options for the treatment of left ventricular obstruction.
The event includes interactive workshops in which small groups discuss clinical, genetic, and imaging cases, with the aim of addressing the discrepancies between guidelines and real-world clinical practice. The initiative also aims to form specialized teams nationwide to care for patients with hypertrophic cardiomyopathy.
Non-competitive sports certificates: the sports cardiology service is active at Auxologico
The Sports Cardiology Clinic of the Auxologico Institute offers a service dedicated to patients affected by cardiomyopathies who require a non-competitive sports certificate.
To access the service, you can book by sending an email to cardiosport@auxologico.it. Requests will be processed within a few days and, if necessary, the documentation to be submitted for the certification to be issued will be indicated.
The service is managed by Dr. Silvia Castelletti, cardiologist at the Auxologico Cardiomyopathy Center and authorized to certify non-competitive fitness. The service is available both on a self-paying and contracted basis. The cost of the certificate is €50,00.
For more information, please visit the Auxologico website. Terms of Service: Non-competitive sports certificate
Psychological support for patients with cardiomyopathy and their families: Auxologico service active
The Istituto Auxologico Italiano offers psychological support to patients with cardiomyopathy and their families, providing targeted emotional assistance. The service is available for adults and minors, after consulting with parents or guardians for minors. For an initial interview, contact:
- Dr. Angela Gammarano, expert in psychological support for children, teenagers and families (a.gammarano@auxologico.it)
- Dr. Clarissa Volpi, specialized in support for adult patients (c.volpi@auxologico.it)
The meetings are held online via the POHEMA platform, with discounted rates for patients with cardiomyopathy: €75,00 for one meeting or €150,00 for three. If the conditions are met, patients can request financial support from the AICARM association. Terms of service: Psychological support service
AICARM: financial support for patients with cardiomyopathy and their families
AICARM has launched a program of financial assistance for patients with cardiomyopathy, offering support for visits, medications, tests, operations, rehabilitation and travel to healthcare facilities. Residents in Italy with a documented diagnosis, ISEE not exceeding €15.000 and medical documentation certifying expenses can access it. Applications, sent to support@aicarm.it with the required form and attachments, will be evaluated by a commission that will consider the severity, economic conditions and expenses. The aid, up to €500 per request, will be granted as a reimbursement, within the limits of the annual funds approved.
Antibiotic prophylaxis and antibiotic resistance Order of Physicians Florence
The Order of Physicians of Florence has published an important document on antibiotic prophylaxis in dentistry, with particular attention to patients with cardiomyopathy. The document emphasizes that the use of antibiotics must be carefully evaluated to avoid the growing problem of antibiotic resistance.
AICARM NEWS
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n ° 6148 of 27/7/2021
SITE MANAGER
Piero Meucci
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