Il Cuore Grande: a book, a therapeutic tool, an aid for patients and doctors

Dear friends of AICARM,

allow me to dedicate this monthly reflection to our latest initiative. The volume we created as an integral part of our communication activity has been available for a few days. It is entitled "The Great Heart, stories of women and men facing the challenge of cardiomyopathies", of which you will find an extensive review in this edition of the newsletter.

The book is part of that particular publicistic vein that is defined as "narrative medicine". A genre that includes different ways of storytelling, but all with the aim of making patients better understand their condition through words and images, while doctors can gain further knowledge on many aspects of the disease.

In this case, together with Laura D'Ettole and our other consultants, we have decided to collect twenty stories, told in the first person or in the form of an interview, accompanied by brief comments, useful for framing the paths described in a scientific and therapeutic way. It is not a simply "consoling" tool that involves emotions and feelings, but transmits a highly informative content, which can be the one that describes painful experiences, crucial decisions, concrete indications resulting from the narrators' experience.

The Big Heart it represents at the same time an arrival point of the first three years of our activity and a starting point on which to build our strategy to be at the service of the AICARM community in an increasingly shared and effective way.

The President

Prof. Franco Cecchi

With your 5×1000 more projects to improve the quality of life of patients with cardiomyopathy

Give us 5 seconds of your time, 5 seconds are enough to assign your 5×1000, a moment of your time to help thousands and thousands of lives.

Il Cuore Grande: twenty tales of pain and reality, of courage and rebirth

The Big Heart, stories of women and men facing the challenge of cardiomyopathies: this book was born around the stories of twenty patients, or their families, who belong to Aicarm (Italian cardiomyopathy association) and wanted to tell their stories. Laura D'Ettole, journalist, has collected, selected and written most of them; Franco Cecchi, president of Aicarm, ensured that explanation and scientific coherence were never lacking, not even in the construction of the book.

The big heart

The patient expert in action: guidance and empathy of a "listening heart"

Cardiomyopathy help

For a few months now, I have been giving some of my time as an AICARM volunteer to the Unit Cardiomyopathies of the AOU Careggi of Florence, currently directed by Prof. Iacopo Olivotto, whose activity began in the early 90s with Prof. Franco Cecchi, when these pathologies were practically unknown. Still only a few doctors, even cardiologists, have full knowledge of it and very few have clinical experience.

Masterclass 2023: more than 150 participants, experts from all over Italy

More than 150 participants including members, sponsors and speakers, mainly from Tuscany and with teachers from all over Italy. These are the numbers Masterclass Hypertrophic cardiomyopathy and cardiac amyloidosis which took place on 8 and 9 June 2023 in the Auditorium at the Cathedral of Florence.

Cardiomyopathies Masterclass

AICARM NEWS

Mark the date: Course for Expert Patients - Arezzo 9 September 2023

We are pleased to announce that the next Course for Expert Patients in hereditary myocardial diseases will be held in Arezzo on 9 September 2023.

The Course will deal with numerous and important aspects of myocardial diseases and their diagnosis and treatment including genetic analysis and counseling, recommended physical activity, treatments for arrhythmias, invasive treatments for hypertrophic obstructive cardiomyopathy and much more. even more. In the next few days we will publish all the details of the event on the AICARM website and on our social networks, stay in touch.

See you in Arezzo!

Change Association IBAN code

Due to the unification of some Credit Agricole bank branches, the IBAN code of our current account has been changed as follows:

IT71W0623002819000040364692
Credit Agricole agency in Florence

Transfers made with the old IBAN code will be automatically redirected for the next 12 months, however please take note of the new coordinates both for the payment of the membership fee and for any donations.

We take this opportunity to thank you for your continued support and commitment to patients with cardiomyopathy.

AICARM Onlus periodically publishes AICARM NEWS, the AICARM newsletter. You can receive the next releases directly in your e-mail box by filling out the form below. To consult the issues released, consult the page: AICARM NEWS, the AICARM newsletter.

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AICARM NEWS June 2023

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